Calvary Health Care Bethlehem, Caulfield South, VIC, Australia.
School of Clinical Sciences, Monash University, Melbourne, VIC, Australia.
Palliat Med. 2023 Jul;37(7):959-974. doi: 10.1177/02692163231175696. Epub 2023 May 30.
Neuropalliative care is a newly-defined subspeciality bringing specific aspects of fields of neurology and palliative care together to better meet the complex care needs of people with progressive neurological diseases. Examining these needs would help provide guidance about developing relevant models of care and identify gaps in research knowledge.
To identify current models and approaches to neuropalliative care for people with progressive neurological diseases and the priorities for future research work.
A scoping literature review following the methods described by the Joanna Briggs Institute.
An electronic search of the literature was undertaken from six sources including MEDLINE (Ovid), EMCARE, PsycINFO and CINAHL covering the years January 2011 to September 2021.
Twenty-eight studies were found examining neuropalliative care from the perspectives of 4795 PND patients, 774 informal carers and 138 health professionals. All studies held themes of integrative care, with most studies employing outpatient models of multidisciplinary care. Topics discussed included: overcoming local system-issues, providing education for professionals, patients and carers, early referral and capturing outcome measures for quality-assurance and future research work.
Most models of neuropalliative care described in the international literature are predominantly outpatient, multidisciplinary and integrative. Clinicians typically utilise existing neurology and palliative care infrastructure to provide care. More high-quality research and outcome tools are needed to guide the design of evidence-based palliative care for people with progressive neurological diseases.
神经姑息治疗是一个新定义的亚专业领域，将神经病学和姑息治疗领域的特定方面结合在一起，以更好地满足进行性神经疾病患者的复杂护理需求。检查这些需求将有助于为制定相关的护理模式提供指导，并确定研究知识方面的差距。
确定目前针对进行性神经疾病患者的神经姑息治疗模式和方法，以及未来研究工作的优先事项。
采用 Joanna Briggs 研究所描述的方法进行范围广泛的文献综述。
从包括 MEDLINE（Ovid）、EMCARE、PsycINFO 和 CINAHL 在内的六个来源对文献进行电子检索，涵盖 2011 年 1 月至 2021 年 9 月的年份。
共发现 28 项研究，从 4795 名 PND 患者、774 名非专业照顾者和 138 名卫生专业人员的角度探讨了神经姑息治疗。所有研究都有综合护理的主题，大多数研究采用多学科的门诊模式。讨论的主题包括：克服当地系统问题、为专业人员、患者和照顾者提供教育、早期转诊以及为质量保证和未来研究工作捕获结果测量。
国际文献中描述的大多数神经姑息治疗模式主要是门诊、多学科和综合性的。临床医生通常利用现有的神经病学和姑息治疗基础设施提供护理。需要更多高质量的研究和结果工具来指导针对进行性神经疾病患者的循证姑息治疗的设计。
