Regadas Claudia Tavares, Escosteguy Claudia Caminha, Fonseca Sandra Costa, Pinheiro Rejane Sobrino, Coeli Cláudia Medina
Instituto de Estudos em Saúde Coletiva, Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brasil.
Instituto Nacional de Saúde da Mulher, da Criança e do Adolescente Fernandes Figueira, Fundação Oswaldo Cruz, Rio de Janeiro, Brasil.
Cad Saude Publica. 2023 Jun 5;39(5):e00165922. doi: 10.1590/0102-311XPT165922. eCollection 2023.
This study aimed to evaluate the evolution of the completeness and consistency of the gastroschisis registry in the Brazilian Live Birth Information System (SINASC). It is a time-series study on the completeness of the variable "occurrence of congenital anomaly" and the consistency of gastroschisis diagnosis in SINASC, in biennia from 2005 to 2020, for federative units, region, and Brazil. The consistency was estimated by the ratio between deaths from gastroschisis registered in the Brazilian Mortality Information System (SIM) and the total number of cases recorded in SINASC. Temporal trend was analyzed by joinpoint regression. In the period, 46,574,995 live births and 10,024 cases of gastroschisis were recorded. A total of 5,632 infant deaths due to gastroschisis were identified. The percentage of incompleteness decreased from 6.52% to 1.87%, with an annual percentage variation (APV) of -14.5%, and completeness reached excellence (≤ 5% of incompleteness), except in the Central-West Region. Case/death ratios above 1 were found in the North and Northeast regions and in some federative units in the Central-West, but there was a decrease, approaching the mortality found in studies in the South and Southeast regions. Its reduction was more pronounced until 2009-2010 (APV = -10.7%) and smaller later (APV = -4.4%). The quality of the gastroschisis registry reflects regional differences in the overall quality of SINASC, constituting as a marker for malformations that require complex neonatal care.
本研究旨在评估巴西活产信息系统（SINASC）中腹裂登记的完整性和一致性的演变情况。这是一项关于SINASC中“先天性异常发生”变量的完整性以及腹裂诊断一致性的时间序列研究，研究对象为2005年至2020年期间的联邦单位、地区和巴西，每两年进行一次。通过巴西死亡信息系统（SIM）中登记的腹裂死亡人数与SINASC中记录的病例总数之比来估计一致性。采用连接点回归分析时间趋势。在此期间，共记录了46,574,995例活产和10,024例腹裂病例。共确定了5,632例因腹裂导致的婴儿死亡。不完整率从6.52%降至1.87%，年百分比变化（APV）为-14.5%，除中西部地区外，完整性达到了优秀水平（不完整率≤5%）。在北部和东北部地区以及中西部的一些联邦单位发现病例/死亡比高于1，但呈下降趋势，接近南部和东南部地区研究中的死亡率。在2009 - 2010年之前下降更为明显（APV = -10.7%），之后下降幅度较小（APV = -4.4%）。腹裂登记的质量反映了SINASC整体质量的区域差异，是需要复杂新生儿护理的畸形的一个标志。
