University Hospitals Leuven, Leuven, Belgium.
Orphanet J Rare Dis. 2023 Jun 8;18(1):141. doi: 10.1186/s13023-023-02765-8.
The World Health Organization supports early delivery of palliative care as it reduces unnecessary hospital admissions and the inappropriate use of health care services. A community pharmacist can play a key role in advocating timely access to palliative care. Medication reconciliation must alert them to start communicating with the patient and/or his relatives about refocusing treatment and care as part of palliative and terminal care. Pharmaceutical activities for these patients include dispensing of devices and medicinal products, compounding personalized medication and participating as a member of the Palliative Support Team. Most of the several thousands of rare diseases are caused by genetic defects and up to now have no cure and a late diagnosis.
世界卫生组织支持尽早提供姑息治疗，因为这可以减少不必要的住院和不适当的医疗服务使用。社区药剂师可以在倡导及时获得姑息治疗方面发挥关键作用。用药重整必须提醒他们开始与患者和/或他的亲属沟通，将治疗和护理重新聚焦作为姑息治疗和终末期护理的一部分。这些患者的药物治疗活动包括配药、配制个性化药物以及作为姑息治疗支持小组的成员参与。数千种罕见病中有大多数是由遗传缺陷引起的，到目前为止还没有治愈方法，而且诊断也较晚。
