Translational Health Research Institute, School of Medicine, Western Sydney University, Locked Bag 1797, Penrith South 2751, Australia.
Translational Health Research Institute, School of Medicine, Western Sydney University, Locked Bag 1797, Penrith South 2751, Australia.
Patient Educ Couns. 2023 Sep;114:107846. doi: 10.1016/j.pec.2023.107846. Epub 2023 Jun 8.
This review assessed the inclusion of lesbian, gay, bisexual, trans, queer and/or intersex (LGBTQI) people in online cancer information.
The websites of Australian cancer organizations were reviewed to identify if they included LGBTQI people and the extent and nature of this inclusion. Websites that did not include LGBTQI people were then reviewed to identify if information was implicitly LGBTQI inclusive. International LGBTQI cancer information resources were reviewed to identify key content.
Of sixty-one Australian cancer organization websites reviewed, eight (13%) mentioned LGBTQI people, including 13 information resources targeted to LGBTQI people and 19 general cancer information resources that mentioned LGBTQI people. For Australian cancer websites that did not mention LGBTQI people, 88% used gender neutral language to refer to partners, 69% included a range of sexual behaviours, 13% used gender neutral language when referring to hormones or reproductive anatomy but none acknowledged diverse relationship types. Internationally, 38 LGBTQI-specific cancer information resources were identified.
Cancer patient information resources need to be LGBTQI inclusive. LGBTQI-targeted resources are required to address this population's unique needs and improve cultural safety and cancer outcomes.
Recommendations are provided for LGBTQI inclusive cancer patient information resources.
本综述评估了在线癌症信息中包含女同性恋、男同性恋、双性恋、跨性别、酷儿和/或双性人（LGBTQI）人群的情况。
对澳大利亚癌症组织的网站进行了审查，以确定它们是否包含 LGBTQI 人群，以及这种包容性的程度和性质。然后，对未包含 LGBTQI 人群的网站进行了审查，以确定是否包含隐式 LGBTQI 包容性信息。对国际 LGBTQI 癌症信息资源进行了审查，以确定关键内容。
在审查的六十一个澳大利亚癌症组织网站中，有八个（13%）提到了 LGBTQI 人群，包括十三个针对 LGBTQI 人群的信息资源和十九个一般性癌症信息资源，其中提到了 LGBTQI 人群。对于未提及 LGBTQI 人群的澳大利亚癌症网站，88%使用中性性别语言来指代伴侣，69%包含各种性行为，13%在提及激素或生殖解剖时使用中性性别语言，但均未承认不同的关系类型。在国际上，确定了 38 个专门针对 LGBTQI 的癌症信息资源。
癌症患者信息资源需要具有 LGBTQI 包容性。需要针对 LGBTQI 人群的特定资源来满足这一人群的独特需求，并提高文化安全性和癌症治疗效果。
为具有 LGBTQI 包容性的癌症患者信息资源提供了建议。
