National Disease Registration Service (NDRS), NHS England, Leeds, UK
National Disease Registration Service (NDRS), NHS England, Leeds, UK.
BMJ Open. 2023 Jun 20;13(6):e070699. doi: 10.1136/bmjopen-2022-070699.
The purpose of the Radiotherapy Dataset (RTDS) is to collect consistent and comparable data across all providers of National Health Service (NHS)-funded radiotherapy and to provide intelligence for service planning, commissioning, clinical practice and research.
The RTDS is a mandated dataset requiring providers to collect and submit data monthly for patients treated in England. Data is available from 01 April 2009 to 2 months behind the calendar month.The National Disease Registration Service (NDRS) started receiving data from 01 April 2016. Prior to this, the National Clinical Analysis and Specialised Applications Team (NATCANSAT) were responsible for the RTDS. NDRS holds a copy of the NATCANSAT data for English NHS providers.The RTDS contains clinical information on the primary disease being treated, modality and intent of treatment, dose fractionation and hospital appointment details. Due to constraints in RTDS coding, linkage to the English National Cancer Registration dataset is beneficial.
The RTDS has been linked to the English National Cancer Registration and Systemic Anti-Cancer Therapy (SACT) datasets and to Hospital Episode Statistics (HES) to provide a more complete picture of the patient cancer pathway. Findings include a study to compare outcomes for patients treated with radical radiotherapy, an investigation of factors influencing 30-day mortality, assessing sociodemographic variation in the use of treatment and a study to assess the service impact of the COVID-19 pandemic. A range of other studies have been completed or are ongoing currently.
The RTDS can be used for a variety of functions including cancer epidemiological studies to investigate inequalities in treatment access; provide service planning intelligence; monitor clinical practice; and support clinical trial design and recruitment. Collection is to continue indefinitely, with regular updates to the data specification to enable capture of more detailed information on radiotherapy planning and delivery.
放射治疗数据集(RTDS)的目的是收集所有英国国家医疗服务体系(NHS)资助的放射治疗提供者的一致和可比数据,并为服务规划、委托、临床实践和研究提供情报。
RTDS 是一个强制性数据集,要求提供者每月为在英格兰接受治疗的患者收集和提交数据。数据可从 2009 年 4 月 1 日获取,至滞后 2 个月的日历月。国家疾病登记处(NDRS)从 2016 年 4 月 1 日开始接收数据。在此之前,国家临床分析和专门应用小组(NATCANSAT)负责 RTDS。NDRS 拥有英国 NHS 提供者的 NATCANSAT 数据副本。RTDS 包含有关正在治疗的主要疾病、治疗方式和目的、剂量分割和医院预约详细信息的临床信息。由于 RTDS 编码的限制,与英国国家癌症登记数据集的链接是有益的。
RTDS 已与英国国家癌症登记和系统抗癌治疗(SACT)数据集以及医院事件统计数据(HES)链接,以更全面地了解患者的癌症治疗途径。研究结果包括一项比较接受根治性放射治疗的患者结果的研究,一项调查影响 30 天死亡率的因素的研究,评估治疗使用中的社会人口学差异的研究,以及一项评估 COVID-19 大流行对服务影响的研究。目前已经完成或正在进行一系列其他研究。
RTDS 可用于多种功能,包括癌症流行病学研究,以调查治疗机会不平等的情况;提供服务规划情报;监测临床实践;并支持临床试验设计和招募。收集将无限期继续,定期更新数据规范,以能够捕获有关放射治疗计划和交付的更详细信息。