Department of Adult Health and Nursing Systems, School of Nursing, Virginia Commonwealth University, Richmond, Virginia.
Department of Adult Health and Nursing Systems, School of Nursing, Virginia Commonwealth University, Richmond, Virginia.
Semin Oncol Nurs. 2023 Aug;39(4):151465. doi: 10.1016/j.soncn.2023.151465. Epub 2023 Jun 22.
Blood cancers can potentially be cured by hematopoietic stem cell transplantation (HCT), but HCT recipients can remain immunocompromised for extended periods of time and require caregiver support. Though the COVID-19 pandemic has globally affected the livelihood and well-being of all individuals, it has affected certain populations in unique ways, HCT recipients being one of them. This study intends to understand the lived experience of HCT recipients and HCT-eligible patients during the COVID-19 pandemic.
This qualitative study enrolled participants (N=25) from a parent study that recruited transplant patients (HCT eligible or HCT recipients) between May and October 2020. Participants were invited to participate on a one-on-one interview via an electronic platform. A phenomenologic qualitative approach was used to identify emerging themes and subthemes.
Three themes were developed: a) the pandemic experience was influenced by the transplant journey; b) participants found ways to thrive despite the odds and access support in unique ways; and c) participants described challenges during the pandemic regarding non-transplant care, vaccine considerations, and distrust in media.
Results from this study highlighted that HCT recipients were uniquely prepared for "out of the ordinary" situations during the pandemic and underscored challenges faced by them during this time, identifying areas for improvement in the health care system. Nurses in their unique role can initiate and lead process changes to address barriers such as lack of access to reliable information, poor communication, and inadequate resources for accessing non-transplant care especially during uncertain times.
造血干细胞移植（HCT）有可能治愈血液癌症，但 HCT 受者可能在很长一段时间内免疫功能低下，需要护理人员的支持。虽然 COVID-19 大流行已经在全球范围内影响到所有人的生计和福祉，但它以独特的方式影响到某些人群，HCT 受者就是其中之一。本研究旨在了解 COVID-19 大流行期间 HCT 受者和 HCT 合格患者的生活体验。
这项定性研究招募了一项母体研究的参与者（N=25），该研究于 2020 年 5 月至 10 月期间招募了移植患者（HCT 合格或 HCT 受者）。邀请参与者通过电子平台进行一对一访谈。采用现象学定性方法来确定新出现的主题和子主题。
确定了三个主题：a）移植经历影响了大流行经历；b）尽管面临困难，但参与者找到了茁壮成长的方法，并以独特的方式获得支持；c）参与者描述了大流行期间在非移植护理、疫苗考虑和对媒体不信任方面面临的挑战。
本研究结果强调，HCT 受者在大流行期间对“异常”情况有独特的准备，并强调了他们在此期间面临的挑战，确定了医疗保健系统需要改进的领域。护士以其独特的角色，可以发起并引领流程变革，以解决缺乏可靠信息、沟通不畅和获取非移植护理资源不足等障碍，特别是在不确定时期。
