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精神分裂症患者康复历程:一项关于体验的定性研究。

Recovery journey of people with a lived experience of schizophrenia: a qualitative study of experiences.

机构信息

Wuhan Mental Health center, Wuhan Hospital for Psychotherapy, Rehabilitation Department, Wuhan, China.

Clinical Research Center for Mental Disorders, Shanghai Pudong New Area Mental Health Center, School of Medicine, Tongji University, Shanghai, China.

出版信息

BMC Psychiatry. 2023 Jun 27;23(1):468. doi: 10.1186/s12888-023-04862-1.

Abstract

BACKGROUND

Mental health recovery involves an integration of clinical and psychosocial frameworks. The recovery journey of individuals diagnosed with schizophrenia and the factors that influence it have been extensively studied. Because the recovery journey is culturally influenced, we examined the recovery process expriences of individuals diagnosed with schizophrenia in China, focusing on the influence of a Confucian-dominated collectivist and family-centred culture.

METHODS

An Interpretive Phenomenological Analysis (IPA) study was conducted; data were gathered through in-depth interviews with 11 individuals with lived experience of schizophrenia.

RESULTS

Four themes were identified in this study: traumatic illness experiences, influence of the family, motives for recovery, and posttraumatic growth, comprising ten subthemes. "For the family" and "relying on oneself" are the main drivers of recovery for individuals with a Chinese cultural background. Some people believe that taking care of themselves is an important way to ease the burden on their families and treat them well. There is a link between 'for the family' and 'relying on oneself.

CONCLUSIONS

Individuals living with schizophrenia in China have undergone significant traumatic experiences and have profound interactions with their families. Post-traumatic growth reflects an increase in the individual's connection to others and individual agency. It also suggests that the individual is not receiving enough support outside of the family. The impact of individual agency and family relationships should be considered in services that promote recovery, and clinic staff should enhance support outside the home to the individuals.

摘要

背景

心理健康康复涉及临床和心理社会框架的整合。个体被诊断为精神分裂症后的康复历程以及影响康复的因素已得到广泛研究。由于康复历程受到文化的影响,我们在中国研究了被诊断为精神分裂症的个体的康复过程体验,重点关注以儒家为主导的集体主义和以家庭为中心的文化的影响。

方法

进行了一项解释性现象学分析(IPA)研究;通过对 11 名有精神分裂症生活经历的个体进行深入访谈收集数据。

结果

本研究确定了四个主题:创伤性疾病经历、家庭的影响、康复动机和创伤后成长,包括十个子主题。对于有中国文化背景的个体来说,“为了家庭”和“依靠自己”是康复的主要动力。有些人认为照顾好自己是减轻家庭负担和善待家人的重要途径。“为了家庭”和“依靠自己”之间存在联系。

结论

在中国,患有精神分裂症的个体经历了重大的创伤性经历,并与他们的家庭有着深刻的互动。创伤后成长反映了个体与他人的联系和个体能动性的增强。这也表明个体在家庭之外没有得到足够的支持。在促进康复的服务中,应该考虑个体能动性和家庭关系的影响,临床工作人员应该加强对个体家庭以外的支持。

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