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遗传性听力障碍患者教育在线资源的全面性。

Comprehensiveness of online sources for patient education on hereditary hearing impairment.

作者信息

Duymaz Yaşar Kemal, Tekin Ahmet M, D'Haese Patrick, Şahin Şamil, Erkmen Burak, Cırık Ahmet Adnan, Topsakal Vedat

机构信息

Department of Otolaryngology, University of Health Science, Umraniye Training and Research Hospital, Istanbul, Türkiye.

Department of Otolaryngology and Head & Neck Surgery, Vrije Universiteit Brussel, University Hospital UZ Brussel, Brussels Health Campus, Brussels, Belgium.

出版信息

Front Pediatr. 2023 Jun 19;11:1147207. doi: 10.3389/fped.2023.1147207. eCollection 2023.

Abstract

INTRODUCTION

The present study aimed at investigating the readability of online sources on hereditary hearing impairment (HHI).

METHODS

In August 2022, the search terms "hereditary hearing impairment", "genetic deafness", hereditary hearing loss", and "sensorineural hearing loss of genetic origin" were entered into the Google search engine and educational materials were determined. The first 50 websites were determined for each search. The double hits were removed and websites with only graphics or tables were excluded. Websites were categorized into either a professional society, a clinical practice or a general health information website. The readability tests to evaluate the websites included: Flesch Reading Ease, Flesch-Kincaid grade level, Gunning-Fog Index, Simple Measure of Gobbledygook, Coleman-Liau Index, Automated Readability Index.

RESULTS

Twentynine websites were included and categorized as from 4 professional societies, 11 from clinical practices and 14 providing general information. All analyzed websites required higher reading levels than sixth grade. On average 12-16 years of education is required to read and understand the websites focused on HHI. Although general health information websites have better readability, the difference was not statistically significant.

DISCUSSION

The readability scores of every type of online educational materials on HHI are above the recommended level indicating that not all patients and parents can comprehend the information they seek for on these websites.

摘要

引言

本研究旨在调查关于遗传性听力障碍(HHI)的在线资源的可读性。

方法

2022年8月,在谷歌搜索引擎中输入搜索词“遗传性听力障碍”“遗传性耳聋”“遗传性听力损失”以及“遗传性感音神经性听力损失”,并确定教育资料。每次搜索确定前50个网站。去除重复的网站,并排除仅包含图形或表格的网站。网站分为专业协会网站、临床实践网站或一般健康信息网站。评估网站的可读性测试包括:弗莱什易读性指数、弗莱什-金凯德年级水平、冈宁-福格指数、简化的晦涩难懂度量表、科尔曼-廖指数、自动可读性指数。

结果

纳入了29个网站,分类如下:4个来自专业协会,11个来自临床实践,14个提供一般信息。所有分析的网站都要求阅读水平高于六年级。阅读和理解关于HHI的网站平均需要12至16年的教育程度。虽然一般健康信息网站的可读性较好,但差异无统计学意义。

讨论

各类关于HHI的在线教育资料的可读性得分均高于推荐水平,这表明并非所有患者和家长都能理解他们在这些网站上查找的信息。

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