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患者、患病者、受害者、伤员还是患有颈椎病脊髓病的人:让我们来决定我们的标识符。

Patient, sufferer, victim, casualty or person with cervical myelopathy: let us decide our identifier.

作者信息

Boerger Timothy F, Davies Benjamin M, Sadler Iwan, Sarewitz Ellen, Kotter Mark R N

机构信息

Physical Therapy, Marquette University, Milwaukee, Wisconsin, USA.

Addenbrooke's Hospital, Cambridge, Cambridgeshire, UK.

出版信息

Integr Healthc J. 2020 Jun 25;2(1):e000023. doi: 10.1136/ihj-2019-000023. eCollection 2020.


DOI:10.1136/ihj-2019-000023
PMID:37441311
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10327448/
Abstract

Among biomedical journals, person-first language is considered preferable to identity person-first language. However, not all populations of people with certain medical diagnoses, such as deafness, prefer person-first language. Moreover, adherence to person-first language is poor among the literature on some neurological diagnoses. Therefore, it is most appropriate to consult with people with a given diagnosis regarding their preferred identifier. Here, we describe a consensus process undertaken by the REsearch objectives and COmmon Data Elements for Degenerative Cervical Myelopathy (RECODE-DCM, recode-dcm.com) steering committee members with cervical myelopathy to determine our preferred identifier.

摘要

在生物医学期刊中,“人先语”被认为比“身份人先语”更可取。然而,并非所有患有某些医学诊断的人群,如失聪者,都偏好“人先语”。此外,在一些神经学诊断的文献中,对“人先语”的遵循情况较差。因此,就特定诊断的人群偏好的标识符咨询他们是最为合适的。在此,我们描述了退行性颈椎病研究目标与通用数据元素(RECODE-DCM,recode-dcm.com)指导委员会成员与颈椎病患者共同开展的一个达成共识的过程,以确定我们偏好的标识符。

相似文献

[1]
Patient, sufferer, victim, casualty or person with cervical myelopathy: let us decide our identifier.

Integr Healthc J. 2020-6-25

[2]
Gathering Global Perspectives to Establish the Research Priorities and Minimum Data Sets for Degenerative Cervical Myelopathy: Sampling Strategy of the First Round Consensus Surveys of AO Spine RECODE-DCM.

Global Spine J. 2022-2

[3]
Development of a core measurement set for research in degenerative cervical myelopathy: a study protocol (AO Spine RECODE-DCM CMS).

BMJ Open. 2022-6-9

[4]
Improving Assessment of Disease Severity and Strategies for Monitoring Progression in Degenerative Cervical Myelopathy [AO Spine RECODE-DCM Research Priority Number 4].

Global Spine J. 2022-2

[5]
Prevailing Outcome Themes Reported by People With Degenerative Cervical Myelopathy: Focus Group Study.

JMIR Form Res. 2021-2-3

[6]
Establishing Diagnostic Criteria for Degenerative Cervical Myelopathy [AO Spine RECODE-DCM Research Priority Number 3].

Global Spine J. 2022-2

[7]
The development of lived experience-centered word clouds to support research uncertainty gathering in degenerative cervical myelopathy: results from an engagement process and protocol for their evaluation, via a nested randomized controlled trial.

Trials. 2021-6-25

[8]
Increasing awareness of degenerative cervical myelopathy: a preventative cause of non-traumatic spinal cord injury.

Spinal Cord. 2021-11

[9]
James Lind Alliance Priority Setting Partnership for Degenerative Cervical Myelopathy [AO Spine RECODE-DCM]: An Overview of the Methodology Used to Process and Short-List Research Uncertainties.

Global Spine J. 2022-2

[10]
Degenerative cervical myelopathy education in UK medical schools: a national cross-sectional survey of medical students.

Br J Neurosurg. 2022-12

引用本文的文献

[1]
A minimum data set-Core outcome set, core data elements, and core measurement set-For degenerative cervical myelopathy research (AO Spine RECODE DCM): A consensus study.

PLoS Med. 2024-8

[2]
Machine Learning and Symptom Patterns in Degenerative Cervical Myelopathy: Web-Based Survey Study.

JMIR Form Res. 2024-1-25

[3]
Toward Shared Decision-Making in Degenerative Cervical Myelopathy: Protocol for a Mixed Methods Study.

JMIR Res Protoc. 2023-10-9

[4]
The information needs of people with degenerative cervical myelopathy: A qualitative study to inform patient education in clinical practice.

PLoS One. 2023

[5]
Osteopathy in the Early Diagnosis and Management of Degenerative Cervical Myelopathy: National Survey.

JMIR Form Res. 2023-5-9

[6]
Targeting earlier diagnosis: What symptoms come first in Degenerative Cervical Myelopathy?

PLoS One. 2023

[7]
Human spinal cord tissue is an underutilised resource in degenerative cervical myelopathy: findings from a systematic review of human autopsies.

Acta Neurochir (Wien). 2023-5

[8]
Most degenerative cervical myelopathy remains undiagnosed, particularly amongst the elderly: modelling the prevalence of degenerative cervical myelopathy in the United Kingdom.

J Neurol. 2023-1

[9]
We Choose to Call it 'Degenerative Cervical Myelopathy': Findings of AO Spine RECODE-DCM, an International and Multi-Stakeholder Partnership to Agree a Standard Unifying Term and Definition for a Disease.

Global Spine J. 2024-3

[10]
A scoping review of information provided within degenerative cervical myelopathy education resources: Towards enhancing shared decision making.

PLoS One. 2022

本文引用的文献

[1]
Person-first language: are we practicing what we preach?

J Multidiscip Healthc. 2019-2-8

[2]
Editorial Perspective: The use of person-first language in scholarly writing may accentuate stigma.

J Child Psychol Psychiatry. 2017-7

[3]
Do we need a new word for patients? Lets do away with "patients".

BMJ. 1999-6-26

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