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2019 - 2021年内分泌ERN知识生成网络研讨会的推广概述。

An overview of the outreach of the 2019-2021 Endo-ERN knowledge generation webinars.

作者信息

Iotova Violeta, Schalin-Jäntti Camilla, Van Beuzekom Charlotte, Bruegmann Petra, Broesamle Manuela, Hiort Olaf, Pereira Alberto M

机构信息

Department of Pediatrics, Medical University of Varna, Varna, Bulgaria.

Department of Endocrinology, Abdominal Center, University of Helsinki and Helsinki University Hospital, Helsinki, Finland.

出版信息

Endocr Connect. 2023 Aug 11;12(9):e220512. doi: 10.1530/EC-22-0512.

Abstract

The current study aims to assess the development of the knowledge generation program of the European Reference Network on Rare Endocrine Conditions (Endo-ERN) from its start in 2019 until December 2021, with special reference to webinars. We analyzed the number of webinars and live/postevent participants and whether participation and engagement of the attendees changed over time. A total of 30 (86%) self-prepared webinars comprising 300 h of knowledge and competence sharing were broadcasted (2019 - 3; 2020 - 13; 2021 - 14). A total of six webinars were broadcasted live prior to the coronavirus disease 2019 pandemic (https://endo-ern.eu/events/webinars/). The most active main thematic group (MTG) was MTG3 Genetic Disorders of Glucose and Insulin Homeostasis with eight (27%) webinars. Two (25%) MTGs fulfilled the goal to prepare at least two to three webinars per year. Patients were actively involved in 20% of the accounted webinars as both creators and presenters. The total number of live and postevent participants was 3023. The availability of the webinars after the live broadcast increased their outreach with a larger number of postevent viewers (n = 1629, 54%). Within the formal structured evaluation of the webinars, 40-85% of the participants replied on separate occasions and helped improve content. The free webinar access is among the perceived reasons for the rapidly increasing number of total hits to the Endo-ERN website. In conclusion, for its short existence, the Endo-ERN rapidly developed educational outreach, and further efforts to attract creators and learners are warranted.

摘要

本研究旨在评估欧洲罕见内分泌疾病参考网络(Endo-ERN)知识生成项目自2019年启动至2021年12月的发展情况,特别提及网络研讨会。我们分析了网络研讨会的数量、直播/会后参与者数量,以及参会者的参与度和参与情况是否随时间变化。共播出了30场(86%)自行准备的网络研讨会,涵盖300小时的知识和能力分享(2019年 - 3场;2020年 - 13场;2021年 - 14场)。在2019冠状病毒病大流行之前,共进行了6场网络研讨会直播(https://endo-ern.eu/events/webinars/)。最活跃的主要主题组(MTG)是MTG3葡萄糖和胰岛素稳态的遗传疾病,有8场(27%)网络研讨会。两个(25%)MTG实现了每年至少准备两到三场网络研讨会的目标。患者作为创作者和演讲者积极参与了20%的已统计网络研讨会。直播和会后参与者总数为3023人。网络研讨会直播后的可用性增加了其影响力,会后观众数量更多(n = 1,629,占54%)。在对网络研讨会的正式结构化评估中,40 - 85%的参与者在不同场合回复,有助于改进内容。免费访问网络研讨会是Endo-ERN网站总点击量迅速增加的原因之一。总之,Endo-ERN在其短暂的存在期间迅速发展了教育影响力,有必要进一步努力吸引创作者和学习者。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f2ba/10448595/3fd38d61f6d1/EC-22-0512fig1.jpg

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