J Health Care Poor Underserved. 2023;34(1):74-101. doi: 10.1353/hpu.2023.0006.
The current study describes how a community-partnered participatory research (CPPR) model was used to enhance hair cortisol research engagement among low-income adults of diverse ethnicities and sexual and gender identities. Participants' reported motivations and concerns surrounding providing a hair sample are also described. Participants from a larger longitudinal study were invited to provide a hair sample and/or complete acceptability interviews. Results indicated that 71% of all persons (N=133) contacted participated in the current study, of whom 82% provided hair samples. Several themes emerged from the interviews indicating that participants were motivated to provide a hair sample due to internal and external factors; however, concerns about mistrust of research remained. Thus, collecting biospecimens in research with underserved groups requires careful consideration of benefits and risks to the individual and their communities. Our results provide guidelines for engaging low-income racially/ethnically and sexually diverse community members in biospecimen research to understand stress-health relationships.
本研究描述了一种社区伙伴参与式研究(CPPR)模式如何被用于提高不同种族、性取向和性别认同的低收入成年人参与毛发皮质醇研究的积极性。文中还描述了参与者提供毛发样本时的动机和顾虑。邀请了来自更大规模纵向研究的参与者提供毛发样本和/或完成可接受性访谈。结果表明,所有联系到的人中(N=133)有 71%参与了当前的研究,其中 82%提供了毛发样本。访谈中出现了几个主题,表明参与者由于内部和外部因素而有动机提供毛发样本;然而,对研究的不信任仍然存在担忧。因此,在针对服务不足群体的研究中收集生物样本需要仔细考虑对个人及其社区的利益和风险。我们的研究结果为让低收入、种族/民族和性多样化的社区成员参与生物样本研究以了解压力与健康之间的关系提供了指导。