Moore Arelis, Cepeda Jenny, Franklin Breauna, Abreu Gabriela, Dorth Shelby, Barkley Ethan
Department of Languages, Clemson University, Clemson, South Carolina, United States.
Researcher Instituto de Medicina Tropical & Salud Global/UNIBE, Los Ríos, Santo Domingo, Dominican Republic.
Can J Diabetes. 2023 Dec;47(8):665-671. doi: 10.1016/j.jcjd.2023.07.006. Epub 2023 Jul 20.
The purpose of this interdisciplinary study was to determine Dominican adolescents' preferences for the content, functionality (i.e. food's glycemic index list, and amount of insulin based on foods' carbohydrate count), and design of a culturally and linguistically relevant mobile application (app) for type 1 diabetes mellitus (T1DM) self-management. The app would facilitate T1DM self-management education and support by addressing providers' challenges in monitoring patients' disease progression and promoting patient adherence to recommended lifestyle changes. Findings inform an app development process that considers the linguistic and cultural values, norms, and structures of people with T1DM and their providers in the Dominican Republic.
Phone interviews were conducted with 23 adolescents (14 to 18 years of age), using a semistructured questionnaire. The research team conducted the data analysis using NVivo through a deductive and inductive approach.
The findings suggest that, regardless of the context, adolescents with T1DM desire similar features and functionalities in a self-management app. Overall, participants preferred an app with a graphic format that has accessible information, a straightforward design, and instructional videos. Participants also desired that an app provide information and reminders about proper eating and insulin administration timing and be a vehicle to access a social network to foster mutual support and encouragement.
Our study highlights adolescents' perspectives on components for inclusion in an app for T1DM self-management. Participants' recommendations for the app's potential usability, contents, and design features will be used to guide the development of a new app to promote engagement and foster better health outcomes.
这项跨学科研究的目的是确定多米尼加青少年对于一款与文化和语言相关的、用于1型糖尿病(T1DM)自我管理的移动应用程序(应用)的内容、功能(即食物血糖指数列表以及基于食物碳水化合物含量的胰岛素用量)和设计的偏好。该应用将通过应对医疗服务提供者在监测患者疾病进展以及促进患者坚持推荐的生活方式改变方面所面临的挑战,来推动T1DM自我管理教育并提供支持。研究结果为应用程序开发过程提供了参考,该过程考虑了多米尼加T1DM患者及其医疗服务提供者的语言和文化价值观、规范及结构。
使用半结构化问卷对23名青少年(14至18岁)进行了电话访谈。研究团队通过演绎和归纳的方法,使用NVivo进行数据分析。
研究结果表明,无论背景如何,患有T1DM的青少年在自我管理应用中都期望具备类似的功能和特性。总体而言,参与者更喜欢具有图形格式、信息易于获取、设计简洁明了且有教学视频的应用。参与者还希望应用能提供有关正确饮食和胰岛素注射时间的信息及提醒,并成为一个能够接入社交网络以促进相互支持和鼓励的平台。
我们的研究突出了青少年对于T1DM自我管理应用中应包含的组件的看法。参与者对于应用潜在可用性、内容和设计特性的建议将用于指导开发一款新应用,以促进参与度并带来更好的健康结果。