Center for Quality, Effectiveness, and Outcomes in Cardiovascular Diseases, Long School of Medicine, University of Texas Health at San Antonio, San Antonio, TX, USA.
Phlebology. 2023 Sep;38(8):503-515. doi: 10.1177/02683555231179536. Epub 2023 Jul 27.
This study seeks to evaluate the quality and readability of freely available online patient information resources for deep vein thrombosis (DVT) and pulmonary embolism (PE).
Internet searches were performed for five DVT and PE search terms in July 2020 across three search engines and two metasearch engines. Qualitative content analysis was performed. Readability was assessed using four validated instruments.
Two hundred fifty websites were identified of which 62 websites met inclusion criteria.Website structure and content were satisfactory (>50% overall score), accountability was mixed between DVT (47%) and PE (56%) sites, while interactivity was poor (<30%). On qualitative content analysis, anticoagulation (95.2%) was the most discussed treatment while the most discussed procedures were IVC filter placement for DVT and thrombolysis for PE. Overall readability was difficult with median level suitable for ages 14-18 years.
Freely available online DVT and PE patient information resources publish appropriate content but have very variable accountability and poor readability for the average patient.
本研究旨在评估深静脉血栓形成（DVT）和肺栓塞（PE）的免费在线患者信息资源的质量和可读性。
2020 年 7 月，我们在三个搜索引擎和两个元搜索引擎上用五个 DVT 和 PE 搜索词进行了互联网搜索。我们进行了定性内容分析。使用四种经过验证的工具评估了可读性。
共确定了 250 个网站，其中 62 个网站符合纳入标准。网站结构和内容令人满意（>50%的总体评分），DVT（47%）和 PE（56%）网站的问责制参差不齐，而互动性较差（<30%）。在定性内容分析中，抗凝（95.2%）是讨论最多的治疗方法，而 DVT 中讨论最多的程序是 IVC 过滤器放置，PE 中讨论最多的程序是溶栓。总体可读性很难，中位数适合 14-18 岁的人群。
免费的在线 DVT 和 PE 患者信息资源发布了适当的内容，但对普通患者来说，其问责制差异很大，可读性也很差。
