Bai Yu-Lin, Shyu Yea-Ing L, Huang Huei-Ling, Chiu Yi-Chen, Hsu Wen-Chuin
School of Nursing, College of Medicine, Chang Gung University, Taoyuan, Taiwan.
NTU BioMedical Park Hospital Zhubei Campus, Zhubei, Taiwan.
J Adv Nurs. 2024 Jan;80(1):252-263. doi: 10.1111/jan.15809. Epub 2023 Jul 28.
Many persons living with dementia (PLWD) reside in the community and are cared for by family members. The aim of this qualitative study was to gain an understanding the enrichment process for family caregivers of PLWD in Taiwan.
A grounded theory approach with face-to-face semi-structured interviews was conducted with family caregivers of PLWD in Taiwan.
Interview data from 30 family caregivers of PLWD recruited from dementia clinics or support groups in Taiwan were obtained from the first wave of a larger study conducted from January 2018 to September 2021. Glaser's grounded theory approach with theoretical sampling was used to understand the enrichment process of family caregivers of PLWD.
Analysis indicated the core category that characterized the process of enrichment was 'holding together'. Caregivers were able to maintain their connection to the person with dementia through activities that deepened their relationship and strengthened their bond. 'Holding together' included four components: maintaining continuity, creative interactions, interacting with humour and sharing pleasurable activities. Through these components, family caregivers generated positive interactions and relationships with the person living with dementia and sustained their motivation for caregiving. Three modifying elements facilitated or impeded the process of holding together: 'previous daily interactions', 'caregiving beliefs' and 'filial piety'.
Through the enrichment process of 'holding together', family caregivers used different strategies to conduct pleasurable and meaningful activities with the person living with dementia to maintain and improve their relationship and enhance their happiness in life.
To facilitate the enrichment process, health care providers should encourage activities between family caregivers and PLWD that promote continuity, increase interactions, provide humour and foster pleasurable activities.
This study adhered to the COREQ guideline checklist.
No patient or public contribution.
许多痴呆症患者（PLWD）居住在社区中，由家庭成员照顾。这项定性研究的目的是了解台湾痴呆症患者家庭照顾者的充实过程。
采用扎根理论方法，对台湾痴呆症患者的家庭照顾者进行面对面半结构化访谈。
从2018年1月至2021年9月进行的一项更大规模研究的第一波中，获取了从台湾痴呆症诊所或支持小组招募的30名痴呆症患者家庭照顾者的访谈数据。采用格拉泽的扎根理论方法和理论抽样来了解痴呆症患者家庭照顾者的充实过程。
分析表明，充实过程的核心类别是“维系在一起”。照顾者能够通过加深关系和加强联系的活动，保持与痴呆症患者的联系。“维系在一起”包括四个要素：保持连续性、创造性互动、幽默互动和分享愉悦活动。通过这些要素，家庭照顾者与痴呆症患者产生了积极的互动和关系，并维持了他们的照顾动力。三个调节因素促进或阻碍了维系在一起的过程：“以前的日常互动”、“照顾信念”和“孝道”。
通过“维系在一起”的充实过程，家庭照顾者采用不同策略与痴呆症患者开展愉悦且有意义的活动，以维持和改善他们的关系，并提升生活中的幸福感。
为促进充实过程，医疗保健提供者应鼓励家庭照顾者与痴呆症患者之间开展促进连续性、增加互动、提供幽默并培养愉悦活动的活动。
本研究遵循COREQ指南清单。
无患者或公众贡献。
