Sleep Disorders Division, Department of Neurology, Vanderbilt University Medical Center, Nashville, Tennessee, USA.
Vanderbilt Kennedy Center for Excellence in Developmental Disabilities, Vanderbilt University Medical Center, Nashville, Tennessee, USA.
Autism Res. 2023 Aug;16(8):1619-1629. doi: 10.1002/aur.2996. Epub 2023 Jul 31.
Autistic adults experience significant unmet healthcare needs, with opportunities for improvement in both the systems and the practitioners who serve this population. Primary care physicians/practitioners (PCPs) are a natural choice to provide comprehensive care to autistic adults but often lack experience in serving this population. This pilot study developed and tested an Extension for Community Healthcare Outcomes (ECHO) Autism model adapted from our previous work, focused specifically on training PCPs in best-practice care for autistic adults. The project was informed directly by the perspectives and preferences of autistic adults, caregivers, and PCPs. Two consecutive cohorts of PCPs participated in ECHO Autism Adult Healthcare sessions. Each cohort met 1 h twice a month for 6 months, with 37 PCPs (n = 20 in Cohort 1, and n = 17 in Cohort 2) participating. Based on findings from the first cohort, adjustments were made to refine the session preparation, curriculum, conduct of the ECHO, resources, and evaluation. After participation in the ECHO Autism program, PCP self-efficacy and satisfaction improved, while the number of perceived barriers did not change. Knowledge did not improve significantly in Cohort 1, but after adjustments to the training model, participants in Cohort 2 showed significant knowledge gains. While attention to systems of care is critical to addressing barriers in healthcare in the autistic population, the ECHO Autism Adult Healthcare model is feasible and holds promise for improving PCP satisfaction and self-efficacy in working with autistic adults.
自闭症成年人存在大量未满足的医疗保健需求,无论是在系统方面还是在为该人群提供服务的从业者方面,都有改进的机会。初级保健医生/从业者(PCP)是为自闭症成年人提供全面护理的理想选择,但他们在为这一人群服务方面往往经验不足。这项试点研究根据自闭症成年人、照顾者和 PCP 的观点和偏好,开发并测试了从我们之前的工作改编而来的扩展社区医疗保健结果(ECHO)自闭症模型,该模型专门侧重于培训 PCP 为自闭症成年人提供最佳实践护理。两个连续的 PCP 队列参加了 ECHO 自闭症成人保健会议。每个队列每月两次,每次 1 小时,持续 6 个月,共有 37 名 PCP 参加(第 1 队列 n=20,第 2 队列 n=17)。根据第一队列的发现,对会议准备、课程、ECHO 的进行、资源和评估进行了调整,以完善培训模型。参加 ECHO 自闭症项目后,PCP 的自我效能感和满意度提高,而感知障碍的数量没有变化。在第 1 队列中,知识没有显著提高,但在调整培训模型后,第 2 队列的参与者表现出显著的知识增长。虽然关注护理系统对于解决自闭症人群中的医疗保健障碍至关重要,但 ECHO 自闭症成人保健模型是可行的,并有望提高 PCP 与自闭症成年人合作的满意度和自我效能感。