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Amyotrophic lateral sclerosis (ALS) health charities are central to ALS care: perspectives of Canadians affected by ALS.肌萎缩侧索硬化症(ALS)健康慈善机构对ALS护理至关重要:受ALS影响的加拿大人的观点。
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2
Intravenous edaravone treatment in ALS and survival: An exploratory, retrospective, administrative claims analysis.依达拉奉静脉治疗对肌萎缩侧索硬化症患者生存率的影响:一项探索性、回顾性、基于行政索赔数据的分析
EClinicalMedicine. 2022 Aug 4;52:101590. doi: 10.1016/j.eclinm.2022.101590. eCollection 2022 Oct.
3
Proposals from a French expert panel for respiratory care in ALS patients.法国专家小组关于 ALS 患者呼吸护理的建议。
Respir Med Res. 2022 May;81:100901. doi: 10.1016/j.resmer.2022.100901. Epub 2022 Mar 3.
4
Evaluation of the Completeness of ALS Case Ascertainment in the US National ALS Registry: Application of the Capture-Recapture Method.应用捕获-再捕获法评价美国国家肌萎缩侧索硬化症注册中心肌萎缩侧索硬化症病例确定的完整性
Neuroepidemiology. 2022;56(2):104-114. doi: 10.1159/000521591. Epub 2021 Dec 20.
5
Clinical trials in amyotrophic lateral sclerosis: a systematic review and perspective.肌萎缩侧索硬化症的临床试验:系统评价与展望
Brain Commun. 2021 Oct 23;3(4):fcab242. doi: 10.1093/braincomms/fcab242. eCollection 2021.
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Prevalence of amyotrophic lateral sclerosis (ALS), United States, 2016.2016年美国肌萎缩侧索硬化症(ALS)的患病率
Amyotroph Lateral Scler Frontotemporal Degener. 2022 May;23(3-4):220-225. doi: 10.1080/21678421.2021.1949021. Epub 2021 Aug 23.
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Optimal NIV Medicare Access Promotion: Patients With Thoracic Restrictive Disorders: A Technical Expert Panel Report From the American College of Chest Physicians, the American Association for Respiratory Care, the American Academy of Sleep Medicine, and the American Thoracic Society.优化无创通气医疗保险准入推广:胸壁受限疾病患者:美国胸科学会、美国呼吸治疗学会、美国睡眠医学学会和美国胸科学会的技术专家小组报告。
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Amyotrophic Lateral Sclerosis Quality Measurement Set 2022 Update: Quality Improvement in Neurology.

作者信息

Kvam Kathryn A, Benatar Michael, Brownlee Alisa, Caller Tracie, Das Rohit R, Green Phil, Kolodziejczak Sherry, Russo John, Sanders Danica, Sethi Nadia, Stavros Kara, Stierwalt Julie, Giles Walters Nancy, Bennett Amy, Wessels Scott R, Brooks Benjamin Rix

机构信息

From the Department of Neurology and Neurological Sciences (K.A.K.), Stanford University, Palo Alto, CA; Department of Neurology (M.B.), Leonard M. Miller School of Medicine, University of Miami, FL; The ALS Association (A.B., J.R.), Washington, DC; Cheyenne Regional Medical Group (T.C.), WY; Department of Neurology (R.R.D.), UT Southwestern Medical Center, Dallas, TX; I AM ALS (P.G., N.S.), Washington, DC; Crestwood ALS Care Clinic (S.K.), Huntsville, AL; Sean M. Healey & AMG Center for ALS (D.S.), Massachusetts General Hospital, Boston; Department of Neurology (K.S.), Warren Alpert Medical School of Brown University, Providence, RI; Mayo Clinic (J.S.), Rochester, MN; Academy of Nutrition and Dietetics (N.G.W.), Chicago, IL; American Academy of Neurology (A.B., S.R.W.), Minneapolis, MN; and Department of Neurology (B.R.B.), Carolinas Medical Center, University of North Carolina School of Medicine, Charlotte.

出版信息

Neurology. 2023 Aug 1;101(5):223-232. doi: 10.1212/WNL.0000000000207166.

DOI:10.1212/WNL.0000000000207166
PMID:37524529
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10401684/
Abstract
摘要