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揭示化脓性汗腺炎诊断与治疗中的种族差异

Unmasking Racial Disparity in the Diagnosis and Treatment of Hidradenitis Suppurativa.

作者信息

Anthony Michelle R, Abdi Parsa, Farkouh Christopher, Maibach Howard I

机构信息

Pathology, University of Arizona College of Medicine, Tuscon, USA.

Faculty of Medicine, Memorial University of Newfoundland, St. John's, CAN.

出版信息

Cureus. 2023 Jun 30;15(6):e41190. doi: 10.7759/cureus.41190. eCollection 2023 Jun.

Abstract

Hidradenitis suppurativa (HS) is a chronic, profoundly incapacitating disease predominantly affecting the apocrine gland-rich areas of the human body. Although it affects 0.05% to 4% of the general population, there exists a significant racial disparity, with people of color, particularly Black individuals, experiencing a notably higher prevalence. Despite this disparity, the current literature lacks comprehensive analyses of HS concerning race and ethnicity, revealing a systemic blind spot in understanding and addressing the disease's racially disproportionate impacts. In this commentary, we aim to shed light on these racial disparities, focusing specifically on the stark inequities related to the timely diagnosis and subsequent dermatological care of HS in the United States. This commentary explores the racial bias in HS prevalence, severity, diagnostic delay, access to specialized care, and underrepresentation in clinical trials. By emphasizing the urgent need to address these disparities, we seek to foster an inclusive dialogue and drive proactive efforts toward achieving equitable care and research representation for all populations affected by this debilitating condition. Through this discussion, we aim to pave the way for a healthcare landscape that acknowledges and addresses the racial disparities inherent in HS, ensuring that advancements in the management of the disease cater to the needs of all populations, irrespective of their racial or ethnic background.

摘要

化脓性汗腺炎(HS)是一种慢性、严重致残的疾病,主要影响人体富含顶泌汗腺的区域。尽管它影响着0.05%至4%的普通人群,但存在显著的种族差异,有色人种,尤其是黑人个体的患病率明显更高。尽管存在这种差异,但当前文献缺乏关于HS的种族和族裔的全面分析,这揭示了在理解和应对该疾病的种族不均衡影响方面存在系统性盲点。在这篇评论中,我们旨在阐明这些种族差异,特别关注与美国HS的及时诊断及后续皮肤科护理相关的严重不平等现象。这篇评论探讨了HS在患病率、严重程度、诊断延迟、获得专科护理以及在临床试验中代表性不足等方面的种族偏见。通过强调解决这些差异的迫切需求,我们寻求促进包容性对话,并推动积极努力,为所有受这种使人衰弱病症影响的人群实现公平护理和研究代表性。通过这次讨论,我们旨在为这样一种医疗保健格局铺平道路,即承认并解决HS中固有的种族差异,确保该疾病管理方面的进展满足所有人群的需求,无论其种族或族裔背景如何。

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