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探索美国医疗系统中患有化脓性汗腺炎的非裔美国人的经历:一项叙述性综述。

Exploring the Experience of Black Americans Living with Hidradenitis Suppurativa in the United States Healthcare System: A Narrative Review.

作者信息

Negbenebor Nicole A, Riley Julia M

机构信息

University of Iowa Hospitals and Clinics, Iowa City, IA, USA.

Department of Dermatology, Northwestern University Feinberg School of Medicine, 676 N. St. Clair Street, Suite 1600, Chicago, IL, 60611, USA.

出版信息

Dermatol Ther (Heidelb). 2025 Jul 25. doi: 10.1007/s13555-025-01496-x.

Abstract

Black Americans face persistent healthcare disparities due to a combination of structural, socioeconomic, and historical factors, which can lead to disparities in healthcare quality access and health outcomes. Hidradenitis suppurativa (HS) is a chronic inflammatory disease that is associated with high physical, socioeconomic, and emotional burdens. HS is an example of the broader heath disparities faced by Black patients in the USA. The overall prevalence of HS in the USA is estimated to be 0.1-1.7%, but the prevalence is more than threefold higher among Black individuals than among White individuals. Black patients with HS often have more severe disease than White patients but face longer diagnostic delays and have less access to specialized dermatologic care. By addressing the barriers to care faced by Black patients with HS, dermatologists and healthcare providers can reduce health disparities and improve outcomes for these patients. The objective of this clinical review is to provide an overview of the disparities in clinical burden, diagnostic delays, and treatment faced by Black patients with HS. We also provide commentary from the physician's perspective on factors that contribute to these health disparities and approaches to reduce barriers to appropriate HS care.

摘要

由于结构、社会经济和历史等多种因素的综合作用,美国黑人面临着持续存在的医疗保健差异,这可能导致医疗保健质量、可及性和健康结果方面的差异。化脓性汗腺炎(HS)是一种慢性炎症性疾病,会带来较高的身体、社会经济和情感负担。HS是美国黑人患者所面临的更广泛健康差异的一个例证。据估计,HS在美国的总体患病率为0.1%-1.7%,但黑人个体的患病率比白人个体高出三倍多。患有HS的黑人患者往往比白人患者病情更严重,但诊断延迟时间更长,获得专业皮肤科护理的机会更少。通过解决患有HS的黑人患者所面临的护理障碍,皮肤科医生和医疗保健提供者可以减少健康差异并改善这些患者的治疗结果。本临床综述的目的是概述患有HS的黑人患者在临床负担、诊断延迟和治疗方面的差异。我们还从医生的角度对导致这些健康差异的因素以及减少适当HS护理障碍的方法进行评论。

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