Terrizzi Brandon F, Lambert Amy Sue, Conard Lee Ann E, Vaughn Lisa M, Lipstein Ellen L
Division of General & Community Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA.
Clinical Psychology, Gallaudet University, Washington, District of Columbia, USA.
Transgend Health. 2023 Jul 28;8(4):337-343. doi: 10.1089/trgh.2021.0120. eCollection 2023 Aug.
Transgender and gender-diverse (TGD) youth face health care decisions that are complicated by both social and medical aspects of gender care. Little is known about how providers support decision-making in this context or the gaps they perceive in decision support.
To explore health care providers' perspectives on the decision-making processes in youth gender care.
We interviewed health care providers (=17) caring for TGD youth and asked about the nature of families' decision-making, providers' role in this process, and potential improvements to existing support systems. Two independent coders coded all responses which were analyzed using thematic analysis.
From providers' perspectives, they serve as "guides" to families through a challenging decision-making process. Youth arrive educated and eager to begin treatment, but caregivers are more hesitant. Providers lack data to address parents' concerns, and struggle to support families through interpersonal conflict. All providers recognized a need to improve decision support for families.
Providers described decision-making in this context as a multistep process where interpersonal conflict and limited data slow progress.
There is ample opportunity to leverage insights from adult and pediatric medical decision-making research to improve decision support for providers, TGD youth, and families.
跨性别和性别多样化(TGD)青少年面临的医疗保健决策因性别护理的社会和医学方面而变得复杂。对于医疗服务提供者在这种情况下如何支持决策制定,或者他们在决策支持方面所察觉到的差距,人们知之甚少。
探讨医疗服务提供者对青少年性别护理决策过程的看法。
我们采访了为TGD青少年提供护理的医疗服务提供者(n = 17),询问了家庭决策的性质、医疗服务提供者在这一过程中的作用以及对现有支持系统的潜在改进。两名独立编码员对所有回复进行编码,并使用主题分析进行分析。
从医疗服务提供者的角度来看,他们在具有挑战性的决策过程中充当家庭的“指导者”。青少年前来就医时已受过教育并渴望开始治疗,但照顾者则更为犹豫。医疗服务提供者缺乏解决家长担忧的数据,并且在处理人际冲突时难以支持家庭。所有医疗服务提供者都认识到需要改善对家庭的决策支持。
医疗服务提供者将这种情况下的决策制定描述为一个多步骤过程,其中人际冲突和有限的数据减缓了进展。
有充分的机会利用成人和儿科医疗决策研究的见解,以改善对医疗服务提供者、TGD青少年及其家庭的决策支持。