School of Education, Victoria University of Wellington, Wellington, New Zealand.
School of Education, The University of Newcastle, Callaghan, Australia.
Augment Altern Commun. 2023 Dec;39(4):241-255. doi: 10.1080/07434618.2023.2215864. Epub 2023 Aug 1.
Due to loss of spoken language and resulting complex communication needs, people with Rett syndrome are obvious candidates for communication intervention. To advance evidence-based practice and guide future research efforts, we identified and summarized 16 communication intervention studies published since a previous 2009 review on this topic. Studies were summarized in terms of (a) participants, (b) dependent variables related to communication, (c) intervention characteristics, (d) outcomes, and (e) certainty of evidence. Across the 16 studies, intervention was provided to a total of 100 participants from 3 to 47 years of age. Half of the studies used systematic instruction to teach aided AAC. Other interventions and associated technologies included music therapy, eye tracking technology, and transcranial stimulation. Positive outcomes (e.g., using AAC devices to make requests and/or initiate social-communication interactions) were reported in 13 of the studies. These 16 new studies provide additional guidance on how to enhance the communicative functioning of people with Rett syndrome. Future research directions are highlighted.
由于丧失口语语言能力和由此产生的复杂沟通需求，雷特综合征患者显然是沟通干预的候选对象。为了推进循证实践并指导未来的研究工作，我们确定并总结了自 2009 年该主题的上一次综述以来发表的 16 项沟通干预研究。研究从以下方面进行了总结：(a) 参与者；(b) 与沟通相关的依赖变量；(c) 干预特征；(d) 结果；和 (e) 证据的确定性。在这 16 项研究中，共对 3 至 47 岁的 100 名参与者提供了干预措施。半数研究使用系统教学来教授辅助性 AAC。其他干预措施和相关技术包括音乐治疗、眼动跟踪技术和经颅刺激。在 13 项研究中报告了积极的结果（例如，使用 AAC 设备进行请求和/或发起社交沟通互动）。这 16 项新研究为如何增强雷特综合征患者的沟通功能提供了更多指导。突出了未来的研究方向。
