Fox Chase Cancer Center, Cancer Prevention and Control, PA, Philadelphia, USA.
ARCHES Health Technology, NY, New York, USA.
J Cancer Educ. 2023 Oct;38(5):1420-1428. doi: 10.1007/s13187-023-02350-4. Epub 2023 Aug 4.
Patient education is an important part of cancer care as it increases patient activation and informed decision-making, reduces anxiety, and improves outcomes. However, challenges to providing appropriate education to patients exist on both the health provider and patient side of the equation, e.g., time constraints and health literacy issues. Digital health education is a fast-growing field of interest that has been shown to improve health outcomes, increase effectiveness of medical treatments and education, lower medical costs, and enhance both clinical diagnosis and research opportunities by streamlining data collection, sharing, and analysis. In 2019, Fox Chase Cancer Center was selected by ARCHES, an established patient education software company, to pilot its award-winning digital patient engagement system MyCareCompass. During the pilot, patients scheduled for port insertions were sent electronic messages inviting them to review various online educational materials related to their procedure and subsequent concerns. The invitations and resources were seamlessly integrated into the scheduling system and timed to arrive when patients would most need them. There was high usage of the port-related materials and patients reported a high level of satisfaction with the delivery system and the information. This automated process of delivering high-quality and relevant patient education was able to be implemented smoothly with IT involvement, had a positive impact on patients without adding any extra burden to the care team, and highlighted opportunities to integrate these types of interventions into routine care.
患者教育是癌症护理的重要组成部分,因为它可以提高患者的积极性和知情决策能力,减轻焦虑,改善治疗效果。然而,在医疗服务提供者和患者这两个方面,都存在提供适当教育的挑战,例如时间限制和健康素养问题。数字健康教育是一个快速发展的领域,它已经被证明可以改善健康结果,提高医疗治疗和教育的效果,降低医疗成本,通过简化数据收集、共享和分析,提高临床诊断和研究机会。2019 年,福克斯蔡斯癌症中心被 ARCHES(一家成熟的患者教育软件公司)选中,试点其屡获殊荣的数字患者参与系统 MyCareCompass。在试点期间,即将接受端口插入的患者会收到电子信息,邀请他们查看与手术和后续问题相关的各种在线教育材料。邀请和资源与预约系统无缝集成,并在患者最需要的时候发送。患者对与端口相关的材料的使用率很高,并报告对交付系统和信息的高度满意度。这种自动提供高质量和相关患者教育的流程在 IT 参与下得以顺利实施,对患者产生了积极影响,而不会给护理团队增加任何额外负担,并凸显了将这些类型的干预措施纳入常规护理的机会。