School of Medicine, Emory University, Atlanta, GA, United States of America.
Children's Healthcare of Atlanta, Atlanta, GA, United States of America.
PLoS One. 2023 Aug 10;18(8):e0289821. doi: 10.1371/journal.pone.0289821. eCollection 2023.
HIV-related stigma is a barrier to engagement in care for young adults living with HIV. Other intersecting forms of stigma (e.g., racism, sexism, homophobia), may worsen HIV-related stigma and impact engagement in care. From November 2020 to February 2021, we conducted 20 in-depth qualitative interviews among young adults living with HIV attending a large, comprehensive HIV care center in Atlanta, Georgia. Semi-structured interview guides based on Earnshaw and Chaudoir's HIV Stigma Framework and the theory of intersectionality facilitated discussion around experiences with various forms of stigma and its possible influence on healthcare engagement. Using the social-ecological model, we used thematic analysis to contextualize how young adults living with HIV experienced intersectional stigma and enacted, anticipated, and internalized HIV stigma in both healthcare and non-healthcare settings. Most participants identified as male, Black/African American, and gay. Participants described stigma at intrapersonal, interpersonal, clinic, and community levels. Intrapersonal stigma was associated with delayed care seeking, isolation, and fear of disclosure. Interpersonal stigma included discrimination from family and friends and avoidance of close relationships to elude disclosure. At the clinic level, stigma included negative experiences with staff in HIV and non-HIV healthcare settings, which contributed to decreased engagement in care. Stigma in the community included differential treatment from employers, community leaders, and religious community and was associated with feelings of helplessness related to current societal inequalities. Coping/motivating mechanisms for stigma included prioritizing health, eliciting support from the medical care team and peers. Our findings show different intersecting stigmas are barriers to healthcare at multiple levels for young adults living with HIV, potentially exacerbating existing health and social disparities. To improve engagement in care among young adults living with HIV, future interventions should address the different mechanisms of stigma at community, clinic, interpersonal and intrapersonal levels by enhancing social support and improving healthcare structural competency.
HIV 相关的污名是阻碍青年 HIV 感染者接受护理的一个因素。其他形式的交叉污名(例如种族主义、性别歧视、恐同)可能会加剧 HIV 相关的污名,并影响他们接受护理。2020 年 11 月至 2021 年 2 月,我们在佐治亚州亚特兰大的一家大型综合 HIV 护理中心对 20 名 HIV 感染者进行了深入的定性访谈。访谈指南基于 Earnshaw 和 Chaudoir 的 HIV 污名框架和交叉性理论,探讨了他们在各种形式的污名以及其对医疗保健参与可能产生的影响方面的经历。我们使用社会生态模型,通过主题分析来了解 HIV 感染者在医疗保健和非医疗保健环境中经历的交叉污名,并探讨他们在这些环境中实施、预期和内化 HIV 污名的方式。大多数参与者为男性、黑人/非裔美国人和同性恋者。参与者描述了个人、人际、诊所和社区层面的污名。个人层面的污名与寻求护理的延迟、孤立和披露恐惧有关。人际层面的污名包括来自家人和朋友的歧视以及为避免披露而避免亲密关系。在诊所层面,污名包括在 HIV 和非 HIV 医疗保健环境中与工作人员的负面经历,这导致他们参与护理的意愿降低。社区层面的污名包括雇主、社区领导和宗教社区的区别对待,这与当前社会不平等相关的无助感有关。应对污名的机制包括优先考虑健康、从医疗团队和同伴那里获得支持。我们的研究结果表明,不同的交叉污名是青年 HIV 感染者在多个层面接受医疗保健的障碍,可能会加剧现有的健康和社会差距。为了提高青年 HIV 感染者参与护理的意愿,未来的干预措施应通过增强社会支持和改善医疗保健结构能力,针对社区、诊所、人际和个人层面的不同污名机制。