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调查慢性病患者的需求:一项横断面研究。

Investigating the Needs of Patients Suffering from Chronic Diseases: A Cross-Sectional Study.

作者信息

Katsarou Aggeliki, Intas George, Polydoropoulou Evgenia, Platis Charalambos, Pierrakos George

机构信息

Department of Radiology, General Hospital of Nikea, Nikaia, Greece.

Department of Nursing, General Hospital of Nikea, Nikaia, Greece.

出版信息

Adv Exp Med Biol. 2023;1425:429-435. doi: 10.1007/978-3-031-31986-0_41.

DOI:10.1007/978-3-031-31986-0_41
PMID:37581816
Abstract

INTRODUCTION

Chronic diseases represent a huge challenge for the health systems globally due to the rapidly increasing number of patients and their long-term need for healthcare. The purpose of this study was to investigate the needs of patients suffering from chronic diseases.

METHODOLOGY

This is a cross-sectional study. The study population consisted of 840 adults with chronic diseases. The data collection was done with an improvised needs survey questionnaire, which included 56 questions. Statistical analyses were performed using IBM SPSS Statistics for Windows, v.25.0, statistical significance being considered at p < 0.05.

RESULTS

The main diseases of the patients were chronic renal failure (22.6%), multiple sclerosis (19%), cancer (19%), diabetes mellitus (7.1%), dementia (6%), and chronic obstructive pulmonary disease (6%). The majority of patients (82.1%) were sick for more than 24 months. Patients seek information from health professionals (4.07 ± 1.4), feel tired (4.05 ± 1.4), have to share their feelings with other family members (4.01 ± 1.4), feel anxious about the future (3.94 ± 1.3), and feel out of control (3.80 ± 1.5).

CONCLUSIONS

Patients with chronic diseases suffer from numerous physical, mental, emotional, and cognitive problems. Paying attention to the unmet needs of patients could have beneficial effects on both patients and their caregivers.

摘要

引言

由于慢性病患者数量迅速增加以及他们对医疗保健的长期需求,慢性病对全球卫生系统构成了巨大挑战。本研究的目的是调查慢性病患者的需求。

方法

这是一项横断面研究。研究人群包括840名患有慢性病的成年人。数据收集使用了一份简易需求调查问卷,该问卷包含56个问题。使用IBM SPSS Statistics for Windows v.25.0进行统计分析,p < 0.05时被认为具有统计学意义。

结果

患者的主要疾病为慢性肾衰竭(22.6%)、多发性硬化症(19%)、癌症(19%)、糖尿病(7.1%)、痴呆症(6%)和慢性阻塞性肺疾病(6%)。大多数患者(82.1%)患病超过24个月。患者向医疗专业人员寻求信息(4.07 ± 1.4),感到疲惫(4.05 ± 1.4),不得不与其他家庭成员分享感受(4.01 ± 1.4),对未来感到焦虑(3.94 ± 1.3),并感觉失去控制(3.80 ± 1.5)。

结论

慢性病患者存在众多身体、心理、情感和认知问题。关注患者未满足的需求可能对患者及其照顾者都有有益影响。

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Information needs of patients with chronic diseases and their relatives for web-based advance care planning: a qualitative interview study.慢性病患者及其亲属对基于网络的预立医疗照护计划的信息需求:一项定性访谈研究。
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