Liu Zhenya, Chen Cancan, Hu Yanli
Henan Provincial People's Hospital, Henan Provincial Key Medicine Laboratory of Nursing, Zhengzhou University People's Hospital, Zhengzhou, China.
School of Nursing, Guangzhou Medical University, Guangzhou, China.
Front Psychiatry. 2023 Aug 4;14:1180317. doi: 10.3389/fpsyt.2023.1180317. eCollection 2023.
Cancer caregivers directly affect patient health outcomes. To maintain the function and health of caregivers so that patients can receive efficient care, we must pay more attention to caregivers' quality of life in the process of caring for patients. However, the factors influencing caregivers' quality of life are complex.
To assess caregivers' quality of life in the process of caring for cancer patients and to explore the factors associated with it.
This was a descriptive correlational study. A self-report questionnaire was used to anonymously collect data from one Chinese cancer hospital. The Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being (FACIT-Sp-12), General Self-efficacy Scale (GSES), Positive and Negative Affect Schedule (PANAS), Connor-Davidson Resilience Scale 10 (CD-RISC-10), 24-item Caregiver Burden Inventory (CBI) and Caregiver Evaluation Questionnaire were used to measure caregivers' spiritual well-being, self-efficacy, affective well-being, resilience, caregiver burden and quality of life. One-way analysis of variance, the Kruskal-Wallis H test and multiple regression analysis were applied to measure the factors influencing caregivers' situations.
A total of 315 caregivers of cancer patients were selected by convenience sampling. All participants were invited to complete the questionnaire through a one-on-one approach.
The mean score for caregiver quality of life was 204.62 ± 36.61. After controlling for demographic factors, self-efficacy (β' = 0.265, < 0.01), resilience (β' = 0.287, < 0.01) and positive affect (β' = 0.103, < 0.01) were protective factors for caregivers' quality of life. Negative affect (β' = -0.217, < 0.01) and caregiver burden (β' = -0.219, < 0.01) were negative factors. Notably, not all of these predictors can predict all dimensions of quality of life.
Caregivers' quality of life needs to be further improved. The results of this study may provide clues to help identify factors influencing caregivers' quality of life and implement targeted strategies to improve their quality of life.
癌症患者的照料者直接影响患者的健康结局。为维持照料者的功能和健康，以便患者能得到有效护理，我们必须在照料患者的过程中更加关注照料者的生活质量。然而，影响照料者生活质量的因素很复杂。
评估癌症患者照料者在照料过程中的生活质量，并探究与之相关的因素。
这是一项描述性相关性研究。采用自填式问卷，通过一对一的方式，从一家中国癌症医院匿名收集数据。使用慢性病治疗功能评估-精神健康量表（FACIT-Sp-12）、一般自我效能感量表（GSES）、正负性情绪量表（PANAS）、康纳-戴维森心理韧性量表10（CD-RISC-10）、24项照料者负担量表（CBI）和照料者评估问卷来测量照料者的精神健康、自我效能感、情感健康、心理韧性、照料者负担和生活质量。采用单因素方差分析、Kruskal-Wallis H检验和多元回归分析来测量影响照料者状况的因素。
通过便利抽样选取了315名癌症患者照料者。所有参与者均被邀请通过一对一的方式完成问卷。
照料者生活质量的平均得分为204.62±36.61。在控制了人口统计学因素后，自我效能感（β'=0.265，<0.01）、心理韧性（β'=0.287，<0.01）和积极情绪（β'=0.103，<0.01）是照料者生活质量的保护因素。消极情绪（β'=-0.217，<0.01）和照料者负担（β'=-0.219，<0.01）是消极因素。值得注意的是，并非所有这些预测因素都能预测生活质量的所有维度。
照料者的生活质量需要进一步提高。本研究结果可能为识别影响照料者生活质量的因素及实施针对性策略以提高其生活质量提供线索。
