巴西头痛登记研究：初步研究的方法和初步数据。
Brazilian headache registry: methods and preliminary data of the pilot study.
机构信息
Hospital Moinhos de Vento, Porto Alegre RS, Brazil.
Fundação Universidade Federal de Ciências da Saúde de Porto Alegre, Porto Alegre RS, Brazil.
出版信息
Arq Neuropsiquiatr. 2023 Aug;81(8):740-747. doi: 10.1055/s-0043-1771175. Epub 2023 Aug 21.
BACKGROUND
Evaluation and treatment of primary and secondary headaches is a global public health challenge. Recognizing the epidemiological impact of headaches, a group of researchers linked to the Brazilian Headache Society proposed the Brazilian Headache Registry and drew up its initial protocol.
OBJECTIVE
Here we describe the methods and preliminary data obtained from the pilot study.
METHODS
This was a multicenter longitudinal observational study conducted between September 2020 and August 2021. Prospective data were collected in three specialist centers for headache care in states in southern and southeastern Brazil. Patients aged 18 years or older who sought care for headache in tertiary centers and who agreed to participate in the study, were considered eligible.
RESULTS
Sixty-six patients were included in the pilot study: 43 (65%) from Rio Grande do Sul state and 23 (35%) from Minas Gerais state. Overall, 90% were female, and the subjects' mean age was 38.2 ± 11.2 years. Primary headaches accounted for 85.3% of the diagnoses made. Among secondary headaches, medication overuse headache was the most frequent type (7.1%).
CONCLUSIONS
The pilot study showed the feasibility of the research protocol developed for tertiary centers. The Brazilian Headache Registry will form a source of longitudinal data with the aim of contributing to better characterization of the various phenotypes of patients with primary and secondary headaches, and to detailing the use of health resources and identifying predictors of better clinical outcomes.
背景
原发性和继发性头痛的评估和治疗是全球公共卫生面临的挑战。为了认识到头痛的流行病学影响，一个与巴西头痛学会有关的研究小组提出了巴西头痛登记处，并制定了其初始方案。
目的
本文介绍了从试点研究中获得的方法和初步数据。
方法
这是一项于 2020 年 9 月至 2021 年 8 月间在巴西南部和东南部的三个头痛专科治疗中心进行的多中心纵向观察性研究。在三级头痛治疗中心就诊且同意参加研究的 18 岁及以上的头痛患者符合入选标准。
结果
试点研究共纳入 66 例患者：来自南里奥格兰德州的 43 例（65%），米纳斯吉拉斯州的 23 例（35%）。总体而言，90%为女性，患者的平均年龄为 38.2±11.2 岁。原发性头痛占诊断的 85.3%。在继发性头痛中，药物过度使用性头痛最常见（7.1%）。
结论
试点研究表明，为三级中心制定的研究方案具有可行性。巴西头痛登记处将成为纵向数据的来源，旨在更好地描述原发性和继发性头痛患者的各种表型，并详细说明卫生资源的使用情况和确定更好临床结局的预测因素。
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