Meyer Sonya, Monachesi Chiara, Barchetti Mara, Lionetti Elena, Catassi Carlo
Department of Occupational Therapy, Ariel University, Ariel 40700, Israel.
Celiac Disease Research Laboratory, Polytechnic University of Marche, 60123 Ancona, Italy.
Children (Basel). 2023 Jul 28;10(8):1300. doi: 10.3390/children10081300.
Children with celiac disease may face challenges in managing a gluten-free diet during their daily interactions and activities. The objective of this study was to compare how children with celiac disease manage their gluten-free diet and participate in food-related activities in Italy and Israel and to assess their quality of life. The previously validated Children's Activities Report (CD-Chart) and the Disease-specific Health-Related Quality of Life Questionnaire for Children with Celiac Disease (CDDUX) were administered in Italy to children aged 8-16 diagnosed with CD ( = 39). The results were compared to data that had been previously gathered from Israeli children with CD ( = 106). The CD-Chart demonstrated satisfactory internal reliability within each cultural group (Italy: α = 0.82; Israel: α = 0.76). Mann-Whitney U-tests indicated significant differences between the two groups. The Italian children exhibited a significantly higher preference for participating in the activities compared to the Israelis ( = 3283.50, < 0.001). Nonetheless, the Italian children displayed a notable decrease in their level of involvement in the preparation required before engaging in different activities ( = 760.50, < 0.001). Moreover, they exhibited significantly lower self-determination in this preparatory process compared to the Israeli children ( = 726.00, < 0.001). Significant group differences were found between the CDDUX children's self-reports and parents' proxy reports in the Israeli group but not in the Italian group. The CD-Chart revealed both shared and distinct participation characteristics in daily food-related activities across different cultural contexts. By incorporating the CD-Chart and the CDDUX, healthcare professionals can emphasize crucial aspects of day-to-day health management and guide them in establishing suitable intervention objectives to enhance effective health self-management.
患有乳糜泻的儿童在日常互动和活动中管理无麸质饮食可能会面临挑战。本研究的目的是比较意大利和以色列患有乳糜泻的儿童如何管理他们的无麸质饮食以及参与与食物相关的活动，并评估他们的生活质量。在意大利，对39名8至16岁被诊断患有乳糜泻的儿童进行了先前验证过的儿童活动报告（CD - Chart）和乳糜泻儿童特定疾病健康相关生活质量问卷（CDDUX）。将结果与之前从106名以色列乳糜泻儿童收集的数据进行比较。CD - Chart在每个文化群体中都显示出令人满意的内部信度（意大利：α = 0.82；以色列：α = 0.76）。曼 - 惠特尼U检验表明两组之间存在显著差异。与以色列儿童相比，意大利儿童对参与活动表现出明显更高的偏好（U = 3283.50，p < 0.001）。尽管如此，意大利儿童在参与不同活动之前所需准备工作的参与程度上显著降低（U = 760.50，p < 0.001）。此外，与以色列儿童相比，他们在这个准备过程中表现出显著更低的自我决定权（U = 726.00，p < 0.001）。在以色列组中，CDDUX儿童的自我报告和父母的代理报告之间发现了显著的组间差异，但在意大利组中没有。CD - Chart揭示了不同文化背景下日常食物相关活动中共同和独特的参与特征。通过纳入CD - Chart和CDDUX，医疗保健专业人员可以强调日常健康管理的关键方面，并指导他们制定合适的干预目标，以加强有效的健康自我管理。
