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了解普遍存在的社区中的慢性疼痛:开放数据的作用。

Understanding chronic pain in the ubiquitous community: the role of open data.

作者信息

Monaco Federico, Georgiadis Emmanouil, Chatsiou Kakia, Bonacaro Antonio

机构信息

Department of Medicine and Surgery, University of Parma, Parma, Italy.

School of Social Sciences and Humanities, University of Suffolk, Ipswich, United Kingdom.

出版信息

Front Pain Res (Lausanne). 2023 Aug 11;4:1208513. doi: 10.3389/fpain.2023.1208513. eCollection 2023.

DOI:10.3389/fpain.2023.1208513
PMID:37637508
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10456860/
Abstract

The combined use of social media, open data, and Artificial Intelligence has the potential to support practitioners and empower patients/citizens living with persistent pain, both as local and online communities. Given the wide availability of digital technology today, both practitioners and interested individuals can be connected with virtual communities and can support each other from the comfort of their homes. Digital means may represent new avenues for exploring the complexity of the pain experience. Online interactions of patients, data on effective treatments, and data collected by wearable devices may represent an incredible source of psychological, sociological, and physiological pain-related information. Digital means might provide several solutions that enhance inclusiveness and motivate patients to share personal experiences, limiting the sense of isolation in both rural and metropolitan areas. Building on the consensus of the usefulness of social media in enhancing the understanding of persistent pain and related subjective experiences via online communities and networks, we provide relevant scenarios where the effectiveness and efficiency of healthcare delivery might be improved by the adoption of the digital technologies mentioned above and repeated subsequently. The aim of this perspective paper is to explore the potential of open data, social media, and Artificial Intelligence in improving the prevention and management of persistent pain by adopting innovative non-biomedical approaches.

摘要

社交媒体、开放数据和人工智能的联合使用有潜力为从业者提供支持,并使患有持续性疼痛的患者/公民获得力量,无论是作为本地社区还是在线社区。鉴于当今数字技术的广泛普及,从业者和感兴趣的个人都可以与虚拟社区建立联系,并在舒适的家中相互支持。数字手段可能为探索疼痛体验的复杂性提供新途径。患者的在线互动、有效治疗数据以及可穿戴设备收集的数据可能是心理、社会学和生理方面与疼痛相关信息的惊人来源。数字手段可能提供多种解决方案,增强包容性并激励患者分享个人经历,减少农村和城市地区的孤立感。基于社交媒体在通过在线社区和网络增强对持续性疼痛及相关主观体验的理解方面的有用性达成的共识,我们提供相关场景,说明通过采用上述数字技术并随后重复应用,医疗保健服务的有效性和效率可能会得到提高。本观点论文的目的是通过采用创新的非生物医学方法,探索开放数据、社交媒体和人工智能在改善持续性疼痛的预防和管理方面的潜力。

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本文引用的文献

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The core minimum dataset for measuring pain outcomes in pain services across Scotland. Developing and testing a brief multi-dimensional questionnaire.用于衡量苏格兰各地疼痛服务中疼痛结果的核心最小数据集。开发并测试一份简短的多维问卷。
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Social Media and Chronic Pain: What Do Patients Discuss?社交媒体与慢性疼痛:患者都在讨论什么?
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Graph Representation Forecasting of Patient's Medical Conditions: Toward a Digital Twin.患者病情的图形表示预测:迈向数字孪生
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Determining chronic pain data elements as a first step towards improving quality of care and research in chronic pain.确定慢性疼痛数据要素是改善慢性疼痛护理和研究质量的第一步。
Acta Biomed. 2021 Sep 2;92(4):e2021272. doi: 10.23750/abm.v92i4.9651.
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Transparency and standardization in using digital patient reported outcome measures (PROMs).使用数字患者报告结局指标(PROMs)时的透明度和标准化。
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