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纤维肌痛症患者在新冠疫情期间对远程康复的信念和期望:一项定性研究。

Beliefs and expectations of patients with fibromyalgia about telerehabilitation during Covid-19 pandemic: A qualitative study.

机构信息

Graduate Program in Health Sciences, Federal University of Sergipe, Av. Marechal Rondon, s/n, São Cristovão, Sergipe, 49100-000, Brazil.

Department of Physical Therapy, Federal University of Sergipe, São Cristovão, Sergipe, Brazil.

出版信息

Musculoskelet Sci Pract. 2023 Oct;67:102852. doi: 10.1016/j.msksp.2023.102852. Epub 2023 Aug 22.

DOI:10.1016/j.msksp.2023.102852
PMID:37639980
Abstract

BACKGROUND

Telerehabilitation as an alternative to physiotherapeutic care has been increasingly implemented in diverse populations. However, this mode of service can evoke beliefs and expectations in patients with fibromyalgia, depending on sociocultural and clinical context, that can cause poor adaptation and dropout from treatment.

OBJECTIVE

To explore beliefs and expectations of individuals with fibromyalgia about physical exercises delivered through telerehabilitation.

METHODS

Thirty individual semi-structured interviews were conducted via videoconference with women with fibromyalgia recruited during COVID-19 pandemic through intentional sampling. These interviews were guided by four questions addressing the beliefs and expectations about telerehabilitation. The interviews were recorded after consent and transcribed using the MAXQDA® software. The inductive approach was performed in which raw data were coded into categories and subcategories.

RESULTS

Participants expect to benefit from telerehabilitation due to flexible hours, no need of travel, socialization, and lower risk of contamination. However, they believe they have difficulties related to the physical absence of the therapist, complexity of the exercises, internet connection problems, adaptation to the domestic routine and availability of schedules.

CONCLUSION

Women with fibromyalgia showed positive expectations about telerehabilitation, relating better socialization with other individuals diagnosed with fibromyalgia, home care with flexible schedule and, to provide needed service to underserved. However, they listed barriers such as the physical absence of the therapist and instability of the internet connection and, the FM symptoms themselves.

摘要

背景

远程康复作为一种替代物理治疗的方法,已经在不同人群中得到了越来越多的应用。然而,这种服务模式可能会引起纤维肌痛患者的信念和期望,这取决于社会文化和临床背景,可能导致患者适应不良和治疗中断。

目的

探索纤维肌痛患者对通过远程康复进行的体育锻炼的信念和期望。

方法

通过视频会议对 COVID-19 大流行期间通过有意抽样招募的女性纤维肌痛患者进行了 30 次个体半结构式访谈。这些访谈由四个问题指导,涉及对远程康复的信念和期望。在征得同意后录制访谈并使用 MAXQDA®软件进行转录。采用归纳法,将原始数据编码为类别和子类别。

结果

参与者期望从远程康复中受益,因为远程康复时间灵活、无需旅行、可以社交以及感染风险较低。然而,他们认为自己存在一些困难,例如治疗师的身体缺席、锻炼的复杂性、互联网连接问题、适应家庭日常生活和时间表的可用性。

结论

纤维肌痛患者对远程康复表现出积极的期望,他们认为远程康复可以更好地进行社交,与其他纤维肌痛患者一起进行家庭护理,灵活安排时间表,并为服务不足的人群提供所需的服务。然而,他们也列出了一些障碍,如治疗师的身体缺席和互联网连接不稳定,以及纤维肌痛本身的症状。

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