探索结直肠癌幸存者对改善护理服务提供和电子健康技术作用的看法：一项定性研究。

Exploring colorectal cancer survivors' perspectives on improving care delivery and the role of e-health technology: a qualitative study.

机构信息

Department of Quality of Care and Health Economics, Center for Nutrition, Prevention, and Health Services, National Institute for Public Health and the Environment, Antonie Van Leeuwenhoeklaan 9, Bilthoven, 3721 MA, the Netherlands.

Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, the Netherlands.

出版信息

Support Care Cancer. 2023 Aug 31;31(9):544. doi: 10.1007/s00520-023-08007-8.

DOI:10.1007/s00520-023-08007-8

PMID:37650936

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10471668/

Abstract

PURPOSE

The purpose of this study was to gather insights from colorectal cancer (CRC) survivors on how to improve care for CRC survivors and how e-health technology could be utilized to improve CRC care delivery.

METHODS

Three semi-structured focus groups were held with sixteen CRC survivors. To initiate the discussion, an online registration form and two vignettes were used. The data was analyzed using the framework method.

RESULTS

Based on survivors' experiences, five themes were identified as opportunities for improving CRC care delivery. These themes include better recognition of complaints and faster referrals, more information as part of the care delivery, more guidance and monitoring of health outcomes, more collaboration between practitioners, and more attention for partners and relatives. In addition, survivors expressed opportunities for using e-health to facilitate information provision, improve communication, and monitor survivors' health conditions.

CONCLUSION

Several suggestions for improvement of CRC care delivery were identified. These often translated into possibilities for e-health to support or improve CRC care delivery. The ideas of survivors align with the vast array of existing e-health resources that can be utilized to enhance CRC care delivery. Therefore, the next step involves addressing the implementation gap between the needs of stakeholders, such as CRC survivors and healthcare providers, and the e-health tools currently available in clinical practice.

摘要

目的

本研究旨在从结直肠癌（CRC）患者那里收集有关如何改善 CRC 患者护理以及电子健康技术如何用于改善 CRC 护理服务的见解。

方法

采用半结构式焦点小组访谈的方法，对 16 名 CRC 幸存者进行了 3 次访谈。为了启动讨论，使用了在线登记表和两个虚拟案例。采用框架方法对数据进行分析。

结果

根据幸存者的经验，确定了五个主题，作为改善 CRC 护理服务的机会。这些主题包括更好地识别投诉和更快地转介、作为护理服务一部分的更多信息、对健康结果的更多指导和监测、更多的从业者之间的合作，以及对伴侣和亲属的更多关注。此外，幸存者还表达了利用电子健康技术促进信息提供、改善沟通和监测幸存者健康状况的机会。

结论

确定了改善 CRC 护理服务的几个建议。这些建议通常转化为电子健康技术支持或改善 CRC 护理服务的可能性。幸存者的想法与大量现有的电子健康资源一致，这些资源可用于增强 CRC 护理服务。因此，下一步涉及解决利益相关者（如 CRC 幸存者和医疗保健提供者）的需求与当前临床实践中可用的电子健康工具之间的实施差距。