Community Health and Development Program, Herbertpur Christian Hospital, Herbertpur, India.
Community Health and Development Program, Herbertpur Christian Hospital, Herbertpur, India
BMJ Glob Health. 2023 Aug;8(8). doi: 10.1136/bmjgh-2022-011671.
Knowledge co-production can improve the quality and accessibility of health, and also benefit service users, allowing them to be recognised as skilled and capable. Yet despite these clear benefits, there are inherent challenges in the power relations of co-production, particularly when experts by experience (EBE) are structurally disadvantaged in communication skills or literacy. The processes of how knowledge is co-produced and negotiated are seldom described. This paper aims to describe processes of co-production building on the experiences of EBE (people with lived experience of psychosocial or physical disability), practitioners and researchers working together with a non-profit community mental health programme in North India. We describe processes of group formation, relationship building, reflexive discussion and negotiation over a 7-year period with six diverse EBE groups. Through a process of discussion and review, we propose these five questions which may optimise co-production processes in communities: (1) Who is included in co-production? (2) How can we optimise participation by people with diverse sociodemographic identities? (3) How do we build relationships of trust within EBE groups? (4) How can we combine psychosocial support and knowledge co-production agendas in groups? and (5) How is the expertise of experts by experience acknowledged?
知识共创可以提高健康的质量和可及性,也有利于服务使用者,使他们被认可为有技能和能力的人。然而,尽管有这些明显的好处,但在共创过程中的权力关系中存在固有的挑战,特别是当有经验的专家(EBE)在沟通技巧或读写能力方面处于结构性劣势时。知识共创和协商的过程很少被描述。本文旨在描述知识共创的过程,这些过程是基于在印度北部的一个非营利性社区心理健康项目中,EBE(有心理或身体残疾经历的人)、从业者和研究人员共同工作的经验。我们描述了在 7 年的时间里,六个不同的 EBE 群体的小组形成、关系建立、反思性讨论和协商的过程。通过讨论和审查的过程,我们提出了这五个问题,这些问题可能会优化社区中的共创过程:(1)谁参与共创?(2)如何优化具有不同社会人口身份的人的参与?(3)如何在 EBE 群体内部建立信任关系?(4)如何在小组中结合心理社会支持和知识共创议程?以及(5)如何承认有经验的专家的专业知识?