School of Social Development, Nanjing Normal University, Nanjing, China.
Department of Social and Behavioural Sciences, City University of Hong Kong, Hong Kong, China.
Int J Qual Stud Health Well-being. 2023 Dec;18(1):2250093. doi: 10.1080/17482631.2023.2250093.
The aim of this study was to explore the self and identity perspectives among Chinese adolescents with severe mental illness (SMI), with a focus on their illness experience and subjective meaning of a formal diagnosis. Thirty-one Chinese adolescents were interviewed and the interview data were analysed strictly according to principles suggested by the constructivist grounded theory approach. Five theoretical codes emerged in this study, including changes of personal values and beliefs, accumulated persistent developmental challenges and personal stresses, ineffective coping strategies and development, symptoms and development of mental illness, and changed perceptions and understandings of self. A proposed model of "The dynamic interactions of Chinese adolescents' identity and mental illness", was constructed and visualized. The results revealed that adolescents' identity formation is a fluctuating and non-linear process, but tends to be predominantly negative. The negative self, as informed by long-term ineffective coping with accumulated persistent developmental challenges and stressful events, develops towards a more serious status of negative identity and contributes to relapse symptoms, although this impact occurs variably with perceived personal characteristics. Besides, some participants who had achieved a state of "Buddha-like numbness" made a conscious decision to live a seemingly normal life while coexisting with their illness. The study also highlighted the positive aspects of identity formation that can arise from the experience of illness, including an enhanced sense of realism and increased empathy. Our findings will imply much the need for person-centred treatment plan and services that take into account of individual situations.
本研究旨在探讨患有严重精神疾病(SMI)的中国青少年的自我和身份认同观点,重点关注他们的疾病经历和正式诊断的主观意义。对 31 名中国青少年进行了访谈,并严格按照建构主义扎根理论方法的原则对访谈数据进行了分析。本研究中出现了五个理论代码,包括个人价值观和信念的变化、累积的持续发展挑战和个人压力、无效的应对策略和发展、精神疾病的症状和发展,以及对自我的感知和理解的变化。构建并可视化了一个题为“中国青少年身份认同与精神疾病的动态相互作用”的模型。研究结果表明,青少年的身份认同形成是一个波动的、非线性的过程,但往往以负面为主。长期应对累积的持续发展挑战和压力事件无效导致的消极自我,朝着更严重的消极身份发展,并导致复发症状,尽管这种影响因个人特征的感知而异。此外,一些达到“佛性麻木”状态的参与者有意识地决定在与疾病共存的同时过看似正常的生活。研究还强调了身份认同形成的积极方面,包括增强的现实感和增加的同理心。我们的研究结果表明,需要制定以患者为中心的治疗计划和服务,这些计划和服务需要考虑到个人情况。