体力活动对晚期多发性硬化症患者的生活体验：与世界建立联系。
The lived experience of physical exertion for persons with advanced multiple sclerosis: making connections with the world.
机构信息
School of Health and Sports Sciences, University of Brighton, Brighton, UK.
出版信息
Disabil Rehabil. 2024 Aug;46(16):3609-3619. doi: 10.1080/09638288.2023.2252329. Epub 2023 Sep 4.
PURPOSE
To explore the lived experience of physical exertion for persons living with advanced multiple sclerosis (MS).
METHOD
An interpretive (hermeneutic) phenomenological approach was undertaken with 8 persons living with advanced MS. Interviews were conducted with exploratory questions that explored participants' experiences of physical exertion. Data was analysed using phenomenological methods and the findings presented as hermeneutic stories.
RESULTS
Participants conveyed physical exertion as a means of influencing their connection with the world. Interpretation identified four subthemes; Lived Body, Sense of Self, Purpose of exertion, and Attributes of the World and an overarching superordinate theme Body-World engagement. Hermeneutic stories illuminated the intertwined relationship between the themes and the idiographic nature of physical exertion.
CONCLUSION
The experience of physical exertion was meaningfully related to participants' sense of self, agency, and 'being in the world'.
目的
探索患有晚期多发性硬化症（MS）的人群进行身体活动的体验。
方法
对 8 名患有晚期 MS 的患者进行了解释（释义）现象学方法研究。采用探索性问题对参与者的身体活动体验进行了访谈。使用现象学方法对数据进行分析，并以解释性故事的形式呈现研究结果。
结果
参与者将身体活动描述为影响他们与世界联系的一种方式。解释确定了四个子主题；体验身体、自我意识、用力的目的以及世界的属性，以及一个统领的上位主题身体-世界的互动。解释性故事阐明了主题之间以及身体活动的特殊性之间的相互关系。
结论
身体活动的体验与参与者的自我意识、能动性和“存在于世界中”密切相关。
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