Kuenzig M Ellen, Im James H B, Coward Stephanie, Windsor Joseph W, Kaplan Gilaad G, Murthy Sanjay K, Benchimol Eric I, Bernstein Charles N, Bitton Alain, Jones Jennifer L, Lee Kate, Peña-Sánchez Juan-Nicolás, Rohatinsky Noelle, Ghandeharian Sara, Jones May Tyrel, Tabatabavakili Sahar, Jogendran Rohit, Weinstein Jake, Khan Rabia, Hazan Elias, Browne Mira, Davis Tal, Goddard Quinn, Gorospe Julia, Latos Kate, Mason Kate, Kerr Jack, Balche Naji, Sklar Anna, Targownik Laura E
SickKids Inflammatory Bowel Disease Centre, Division of Gastroenterology, Hepatology, and Nutrition, The Hospital for Sick Children, Toronto, Ontario, Canada.
Child Health Evaluative Sciences, SickKids Research Institute, The Hospital for Sick Children, Toronto, Ontario, Canada.
J Can Assoc Gastroenterol. 2023 Sep 5;6(Suppl 2):S16-S22. doi: 10.1093/jcag/gwad009. eCollection 2023 Sep.
People living with inflammatory bowel disease (IBD) and their caregivers are faced with indirect and out-of-pocket costs that they would not otherwise experience. These costs impact one's ability to contribute to the economy to their fullest potential. The indirect costs of IBD in Canada are estimated to be at least $1.51 billion in 2023 and include costs associated with lost productivity resulting from a combination of missed work (absenteeism), decreased workplace productivity (presenteeism), unemployment, premature mortality, and caregiving costs. Unemployment is the largest contributor to indirect costs ($1.14 billion), followed by costs of absenteeism and presenteeism ($285 million). Caregiving costs for children with IBD are estimated to be nearly $58 million. Canadians with IBD also pay $536 million every year for care that is not covered by universal or supplemental private health insurance; this includes allied healthcare (e.g., care provided by psychologists), medication, and other supportive therapy. Combined, the indirect and out-of-pocket costs of IBD in Canada are estimated at more than $2 billion CAD in 2023. This is substantially higher than the estimate of $1.29 billion in Crohn's and Colitis Canada's 2018 Impact of IBD report with differences attributable to a combination of rising prevalence, inflation, and the addition of presenteeism and caregiving costs to the total indirect costs.
炎症性肠病（IBD）患者及其护理人员面临着原本不会产生的间接成本和自付费用。这些成本影响了人们充分发挥其经济贡献潜力的能力。2023年，加拿大IBD的间接成本估计至少为15.1亿加元，包括因旷工、工作场所生产力下降（出勤主义）、失业、过早死亡和护理成本等综合因素导致的生产力损失相关成本。失业是间接成本的最大贡献因素（11.4亿加元），其次是旷工和出勤主义成本（2.85亿加元）。IBD患儿的护理成本估计近5800万加元。患有IBD的加拿大人每年还需支付5.36亿加元用于全民或补充私人医疗保险未涵盖的护理费用；这包括联合医疗保健（如心理学家提供的护理）、药物和其他支持性治疗。综合来看，2023年加拿大IBD的间接成本和自付费用估计超过20亿加元。这大大高于加拿大克罗恩病和结肠炎协会2018年IBD影响报告中的12.9亿加元估计数，差异归因于患病率上升、通货膨胀以及在总间接成本中增加了出勤主义和护理成本等多种因素。
