Odense University Hospital.
Oncol Nurs Forum. 2023 Aug 17;50(5):635-645. doi: 10.1188/23.ONF.635-645.
To explore whether patients with multiple myeloma changed their construct of health-related quality of life during treatment.
PARTICIPANTS & SETTING: 14 participants were selected from 10 hematology-oncology departments in Denmark.
This interview study used a prospective, longitudinal, exploratory design. Semistructured interviews were conducted while participants were undergoing active treatment for multiple myeloma and six months after the baseline interview. Interviews were analyzed using systematic text condensation.
The overall theme at baseline was insecurity, and the overall theme at six months was coping. The following subthemes were also identified based on participants' description of their health-related quality of life: concerns about having a meaningful life, dealing with everyday limitations, and maintaining social networks; adjusting expectations to abilities; expanding social networks; and exploring a meaningful life.
Patients' ability to use coping strategies should be considered when screening for rehabilitation needs. During systematic in-depth symptom screening, unmet rehabilitation needs (e.g., physical functioning, fatigue, pain) may become apparent.
探讨多发性骨髓瘤患者在治疗过程中是否改变了其健康相关生活质量的构建。
从丹麦 10 个血液肿瘤科中选择了 14 名参与者。
这项访谈研究采用了前瞻性、纵向、探索性设计。在多发性骨髓瘤患者接受积极治疗期间以及基线访谈后 6 个月进行了半结构化访谈。使用系统文本凝聚对访谈进行分析。
基线时的总体主题是不安全感，6 个月时的总体主题是应对。根据参与者对其健康相关生活质量的描述，还确定了以下子主题：对有意义的生活的担忧、应对日常限制、维持社交网络；调整期望以适应能力；扩大社交网络；探索有意义的生活。
在筛查康复需求时，应考虑患者使用应对策略的能力。在系统深入的症状筛查过程中，可能会出现未满足的康复需求（例如，身体功能、疲劳、疼痛）。
