Yang Young Mi, Kim Jeung Im
Department of Nursing, Backsuk University, Cheonan, Korea.
Korean J Women Health Nurs. 2017 Dec;23(4):287-298. doi: 10.4069/kjwhn.2017.23.4.287. Epub 2017 Dec 27.
The purpose of this study was to deepen understanding the nature of the care experience by the mothers with adult children in persistent vegetative state.
Participants were 7 mothers caring for their adult children in persistent vegetative state. Data were collected individually through in-depth interviews on their lived experiences. Also texts were included as data from literary works, novels, movies, essays, and arts containing on patients with persistent vegetative state and their mothers. Data were analyzed by van Manen's phenomenological methodology.
The essential themes of caring experiences of the mothers were as follows. The theme in relation to lived time has shown as back to the past and caring experience related lived body has emerged as locked the body in children. The theme related lived space was getting into the swamp and the theme in lived others was derived as lonely struggle into.
The nature of mothers' caring experiences for adult children in persistent vegetative state is summarized as 'Do not off hand of hope in a locked state'. This study suggests long-term supports are necessary for mothers to care persistent vegetative state children.
本研究旨在加深对处于持续性植物状态成年子女的母亲护理经历本质的理解。
参与者为7位照顾处于持续性植物状态成年子女的母亲。通过对她们生活经历的深入访谈单独收集数据。此外，还纳入了文学作品、小说、电影、散文以及包含持续性植物状态患者及其母亲的艺术作品中的文本作为数据。采用范曼的现象学方法对数据进行分析。
母亲护理经历的基本主题如下。与生活时间相关的主题表现为回到过去，与生活身体相关的护理经历表现为将身体锁定在子女身上。与生活空间相关的主题是陷入困境，与生活他人相关的主题是孤独挣扎。
处于持续性植物状态成年子女的母亲护理经历的本质概括为“在锁定状态下不要轻易放弃希望”。本研究表明，对于护理持续性植物状态子女的母亲，长期支持是必要的。
