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创伤应激领域的数据共享与再利用:创伤研究人员的国际调查。

Data sharing and re-use in the traumatic stress field: An international survey of trauma researchers.

机构信息

Department of Psychology, Eastern Michigan University, Ypsilanti, MI, USA.

Center for Injury Research and Prevention, Roberts Center for Pediatric Research, Children's Hospital of Philadelphia and University of Pennsylvania Perelman School of Medicine, Philadelphia, PA, USA.

出版信息

Eur J Psychotraumatol. 2023;14(2):2254118. doi: 10.1080/20008066.2023.2254118.

DOI:10.1080/20008066.2023.2254118
PMID:37703089
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10501165/
Abstract

BACKGROUND

The FAIR data principles aim to make scientific data more Findable, Accessible, Interoperable, and Reusable. In the field of traumatic stress research, FAIR data practices can help accelerate scientific advances to improve clinical practice and can reduce participant burden. Previous studies have identified factors that influence data sharing and re-use among scientists, such as normative pressure, perceived career benefit, scholarly altruism, and availability of data repositories. No prior study has examined researcher views and practices regarding data sharing and re-use in the traumatic stress field.

OBJECTIVE

To investigate the perspectives and practices of traumatic stress researchers around the world concerning data sharing, re-use, and the implementation of FAIR data principles in order to inform development of a FAIR Data Toolkit for traumatic stress researchers.

METHOD

A total of 222 researchers from 28 countries participated in an online survey available in seven languages, assessing their views on data sharing and re-use, current practices, and potential facilitators and barriers to adopting FAIR data principles.

RESULTS

The majority of participants held a positive outlook towards data sharing and re-use, endorsing strong scholarly altruism, ethical considerations supporting data sharing, and perceiving data re-use as advantageous for improving research quality and advancing the field. Results were largely consistent with prior surveys of scientists across a wide range of disciplines. A significant proportion of respondents reported instances of data sharing and re-use, but gold standard practices such as formally depositing data in established repositories were reported as infrequent. The study identifies potential barriers such as time constraints, funding, and familiarity with FAIR principles.

CONCLUSIONS

These results carry crucial implications for promoting change and devising a FAIR Data Toolkit tailored for traumatic stress researchers, emphasizing aspects such as study planning, data preservation, metadata standardization, endorsing data re-use, and establishing metrics to assess scientific and societal impact.

摘要

背景

FAIR 数据原则旨在使科学数据更易发现、获取、互操作和重用。在创伤应激研究领域,FAIR 数据实践可以帮助加速科学进步,改善临床实践,并减轻参与者的负担。先前的研究已经确定了影响科学家数据共享和再利用的因素,例如规范压力、感知职业利益、学术利他主义以及数据存储库的可用性。先前的研究尚未调查创伤应激领域研究人员对数据共享和再利用的看法和实践。

目的

调查全球创伤应激研究人员在数据共享、再利用以及 FAIR 数据原则实施方面的观点和实践,以为创伤应激研究人员制定 FAIR 数据工具包提供信息。

方法

共有来自 28 个国家的 222 名研究人员参与了一项在线调查,该调查提供了七种语言版本,评估了他们对数据共享和再利用的看法、当前实践,以及采用 FAIR 数据原则的潜在促进因素和障碍。

结果

大多数参与者对数据共享和再利用持积极态度,赞同强烈的学术利他主义、支持数据共享的道德考虑因素,以及认为数据再利用有利于提高研究质量和推动该领域的发展。研究结果与广泛学科领域的科学家先前的调查结果基本一致。相当一部分受访者报告了数据共享和再利用的实例,但报告的正式将数据存入既定存储库等黄金标准做法却很少见。该研究确定了一些潜在的障碍,例如时间限制、资金和对 FAIR 原则的熟悉程度。

结论

这些结果对促进变革和为创伤应激研究人员量身定制 FAIR 数据工具包具有重要意义,强调了研究计划、数据保存、元数据标准化、支持数据再利用以及建立评估科学和社会影响的指标等方面。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0101/10501165/d2682652911f/ZEPT_A_2254118_F0002_OB.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0101/10501165/59c0488227da/ZEPT_A_2254118_F0001_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0101/10501165/d2682652911f/ZEPT_A_2254118_F0002_OB.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0101/10501165/59c0488227da/ZEPT_A_2254118_F0001_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0101/10501165/d2682652911f/ZEPT_A_2254118_F0002_OB.jpg

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