Department of Neurosurgery, Helsinki University Hospital, Helsinki, Finland.
Department of Neurosurgery, Kuopio University Hospital, Kuopio, Finland.
Eur Spine J. 2023 Nov;32(11):3731-3743. doi: 10.1007/s00586-023-07874-3. Epub 2023 Sep 17.
Our aim was to develop a nationwide, computer-based, Spine Register (FinSpine) for monitoring surgical activity, quality of surgery, long-term outcomes, and effectiveness of treatment. In this paper, we describe our experiences in the development and implementation of the register.
The register was developed by a steering group, consisting of orthopedic surgeons and neurosurgeons from the whole country. We strived to develop a register which would be in active use by spine surgeons and enable collection of Patient Reported Outcome and Experience Measures (PROMs and PREMs) automatically and prospectively. We are actively promoting the use of the register in order to gain a nationwide coverage and achieve high response-rates from both surgeons and patients.
The use of FinSpine started in 2016 and it has been granted continuous funding from the Finnish Institute for Health and Welfare from the 1st of January 2023 onwards. Currently the register is used by 19/23 (83%) public hospitals and the use is expanding to private hospitals as well. The response-rate of surgeons is currently 80%. The response-rate of patients is on average 56% but reaches up to 90% in hospitals using register-coordinators.
The use of FinSpine is increasing. By gaining a larger coverage and completeness, the data can be used for research purposes which we believe will influence decision making and ultimately improve the outcomes and quality of life of the patients. Comparison with other national spine registers is possible, since FinSpine includes similar baseline characteristics and outcome measures (e.g., ODI, EQ-5D, VAS).
我们旨在开发一个全国性的、基于计算机的脊柱注册系统（FinSpine），以监测手术活动、手术质量、长期结果和治疗效果。本文介绍了我们在该注册系统的开发和实施过程中的经验。
该注册系统由一个由来自全国各地的骨科医生和神经外科医生组成的指导小组开发。我们努力开发一个能够被脊柱外科医生积极使用的注册系统，并能够自动和前瞻性地收集患者报告的结果和体验测量（PROMs 和 PREMs）。我们正在积极推广该注册系统的使用，以实现全国范围内的覆盖，并获得来自外科医生和患者的高响应率。
FinSpine 的使用始于 2016 年，自 2023 年 1 月 1 日起，芬兰卫生福利研究所已连续为其提供资金。目前，该注册系统已被 19/23（83%）家公立医院使用，使用范围正在扩大到私立医院。目前外科医生的响应率为 80%。患者的响应率平均为 56%，但在使用注册协调员的医院中可达 90%。
FinSpine 的使用正在增加。通过获得更大的覆盖范围和完整性，这些数据可用于研究目的，我们相信这将影响决策，并最终改善患者的结果和生活质量。与其他国家的脊柱注册系统进行比较是可行的，因为 FinSpine 包括类似的基线特征和结果测量（例如 ODI、EQ-5D、VAS）。
