Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada.
Faculty of Science, York University, Toronto, Canada.
Disabil Rehabil. 2024 Aug;46(17):3849-3868. doi: 10.1080/09638288.2023.2258792. Epub 2023 Sep 22.
Asian children and youth with disabilities often experience multiple barriers, stigmas and discrimination within and outside their families; yet less is understood about their lived experiences. This systematic review explored the experiences of ableism among Asian children and youth with disabilities and their families.
We conducted a systematic review of qualitative studies and a qualitative meta-synthesis. We searched six databases including Ovid Medline, Embase, PsychInfo, Healthstar, Web of Science, and Scopus.
Forty-two articles met our inclusion criteria involving 17 countries and regions over a 22-year period. The findings were synthesized into four themes: (1) individual- and family-level ableism (i.e., stigma, fears, concerns, stress and anxieties, physical abuse, bullying, reduced engagement in community activities); (2) institutional-level ableism (i.e., barriers to accessing and navigating supports, ableist attitudes among service providers, unavailable services); (3) societal-level ableism (i.e., cultural and religious stigma, social rejection, discrimination, environmental and policy barriers); and (4) coping strategies (i.e., self-care activities, supports from family, friends and people with similar conditions, religious beliefs).
Our results highlight the ableist experiences that Asian children and youth with disabilities and their caregivers often encounter and the strong need for further supports to address ableism using culturally responsive strategies.
亚洲残疾儿童和青年在家庭内外常常面临多种障碍、污名和歧视；然而，对于他们的生活经历，我们的了解还很有限。本系统综述探讨了亚洲残疾儿童和青年及其家庭所经历的能力歧视现象。
我们对定性研究进行了系统综述和定性元分析。我们在六个数据库中进行了检索，包括 Ovid Medline、Embase、PsychInfo、Healthstar、Web of Science 和 Scopus。
42 篇文章符合纳入标准，涉及 17 个国家和地区，跨越了 22 年的时间。研究结果综合为四个主题：（1）个人和家庭层面的能力歧视（即污名、恐惧、担忧、压力和焦虑、身体虐待、欺凌、减少参与社区活动）；（2）机构层面的能力歧视（即获得和利用支持的障碍、服务提供者的能力歧视态度、服务不可用）；（3）社会层面的能力歧视（即文化和宗教污名、社会排斥、歧视、环境和政策障碍）；（4）应对策略（即自我保健活动、来自家庭、朋友和有类似情况的人的支持、宗教信仰）。
我们的研究结果强调了亚洲残疾儿童和青年及其照顾者经常面临的能力歧视经历，以及强烈需要进一步支持，以使用文化响应策略来解决能力歧视问题。
