Ammar-Shehada Walaa, Abusaman Khaled, Bracke Piet
Health and Demographic Research, Ghent University, Ghent, Belgium.
Independent Researcher, Gaza, Palestine.
Front Sociol. 2023 Sep 7;8:1227529. doi: 10.3389/fsoc.2023.1227529. eCollection 2023.
Breast cancer (BC) is a traumatic illness. BC is the leading female cancer in Palestine. Complex socio-political dynamics impact patients' lives, resulting in an increasing need for social support to develop resilience after illness.
Data was collected through a cross-sectional survey targeting women living in the Gaza Strip who had been diagnosed with BC. The survey was self-administered and distributed to 350 women between 1 March and 30 May 2021. Descriptive statistics and multinomial logistic regression analysis (SPSS, version 28.0) were used to explore perceived support, post-illness social and marital changes and the association between these changes and socio-demographic, illness-related and support-related variables.
About four-fifth of the women with BC felt supported after illness, either fully or partially, mainly by family members, non-governmental organisations, spouses, and peers. Nevertheless, nearly half of the women perceived negative social changes after illness, and about 40% of married or formerly married women perceived negative changes in their marital life. Survivors' lived experiences varied by age, marital status, motherhood, prescribed treatment (specifically mastectomy), and the absence of informal support in social life and lack of partner support amongst married or formerly married women.
This study shows how BC undermines the social status of women and further exacerbates existing social vulnerabilities. Nevertheless, it is possible to manage and potentially overturn this circumstance by enveloping patients with social support. Guiding partners, families, and friends on providing emotional and instrumental support will help survivors to cope better during recovery.
乳腺癌是一种创伤性疾病。乳腺癌是巴勒斯坦女性中最主要的癌症。复杂的社会政治动态影响着患者的生活,导致对社会支持的需求日益增加,以便在患病后培养恢复力。
通过一项横断面调查收集数据,该调查针对居住在加沙地带且已被诊断患有乳腺癌的女性。该调查采用自填式,于2021年3月1日至5月30日期间分发给350名女性。使用描述性统计和多项逻辑回归分析(SPSS,版本28.0)来探讨感知到的支持、患病后的社会和婚姻变化,以及这些变化与社会人口学、疾病相关和支持相关变量之间的关联。
约五分之四的乳腺癌女性在患病后感到得到了支持,无论是完全还是部分得到支持,主要来自家庭成员、非政府组织、配偶和同龄人。然而,近一半的女性在患病后察觉到负面的社会变化,约40%的已婚或曾婚女性察觉到婚姻生活中的负面变化。幸存者的生活经历因年龄、婚姻状况、生育情况、规定的治疗(特别是乳房切除术),以及社会生活中缺乏非正式支持和已婚或曾婚女性缺乏伴侣支持而有所不同。
本研究表明乳腺癌如何损害女性的社会地位,并进一步加剧现有的社会脆弱性。然而,通过为患者提供社会支持,可以管理并有可能扭转这种情况。指导伴侣、家人和朋友提供情感和实际支持将有助于幸存者在康复期间更好地应对。