Department of Nursing Science, University of Turku, Turku, Finland.
FEANS, Department of Nursing Science, University of Turku, Finland and Director of Nursing, Turku University Hospital, Turku, Finland.
Scand J Caring Sci. 2024 Mar;38(1):136-149. doi: 10.1111/scs.13215. Epub 2023 Oct 3.
To analyse the ethical pathway as perceived by individuals with stroke (IwS) in the first three post-stroke months. In the novel concept of ethical pathway, dignity, privacy, and autonomy are considered as dimensions of the ethical pathway while the pathway illustrates their potential change in the post-stroke time. Furthermore, the focus of interest was on whether the perceived realisation of values is associated with the life situational factors of symptoms diminishing functioning, social environment, and self-empowerment.
A follow-up study with a descriptive correlational design was used to capture the changes in the perceived realisation of values.
The study followed the ethical principles of research involving human participants. The study was approved by the ethics committee of the university and one of the university hospitals following national standards. Permission to conduct the study was obtained from the university hospitals.
Data were collected from IwS after the onset of stroke and 3 months post-stroke with the Ethical Pathway of Individuals with Stroke instrument and background questions and were analysed statistically.
Thirty-six participants completed the questionnaire at both measurement points. Wide variety in the ethical pathway was detected. IwS' perceived dignity decreased and autonomy increased. Privacy did not change significantly. Of the life situational factors, IwS perceived less symptoms diminishing functioning and stronger self-empowerment while social environment was perceived as rather stable. Only one association was detected between the dimensions of the ethical pathway and life situational factors: autonomy had a low negative correlation with social environment of health care professionals.
The results provide preliminary evidence of the dynamic nature of the ethical pathway. The ethical pathway was incompletely realised for most participants and requires special attention and improvement in health care. The sample size is small and the results are therefore not generalisable.
分析脑卒中患者（IwS）在脑卒中后 3 个月内感知到的伦理途径。在伦理途径的新观念中，尊严、隐私和自主权被视为伦理途径的维度，而途径则说明了它们在脑卒中后时间内潜在的变化。此外，研究的重点是感知到的价值观实现是否与症状减轻功能、社会环境和自我赋权等生活情境因素有关。
本研究采用描述性相关性研究设计，用于捕捉感知到的价值观实现的变化。
该研究遵循了涉及人类参与者的研究的伦理原则。该研究经大学和一所大学附属医院的伦理委员会按照国家标准批准，并获得了大学附属医院的研究许可。
数据是在脑卒中发作后和 3 个月后从 IwS 收集的，使用了个体脑卒中的伦理途径量表和背景问题，并进行了统计学分析。
36 名参与者在两个测量点都完成了问卷。在伦理途径方面存在广泛的差异。IwS 的感知尊严下降，自主权增加。隐私没有显著变化。在生活情境因素方面，IwS 感知到的症状减轻功能减弱，自我赋权增强，而社会环境被认为相对稳定。仅检测到伦理途径的维度和生活情境因素之间的一个关联：自主权与医护人员的社会环境呈低度负相关。
研究结果初步证明了伦理途径的动态性质。大多数参与者的伦理途径没有完全实现，需要在医疗保健中特别关注和改进。样本量较小，因此结果不具有普遍性。
