Department of Psychology, University of Bath, Bath, UK.
Division of Psychology and Mental Health, University of Manchester, Manchester, UK.
Health Expect. 2024 Feb;27(1):e13889. doi: 10.1111/hex.13889. Epub 2023 Oct 12.
There is limited research on what, when and how outcomes should be measured in psychological therapy trials in acute mental health inpatient wards.
This study aimed to consider what outcomes service users think are important to measure.
This qualitative study explored the views of 14 participants, who had an inpatient admission within the last year, on outcomes of psychological therapies using semistructured interviews. Data were analysed using thematic analysis from a critical realist perspective with both inductive and deductive coding.
The 126 outcomes that were important to participants were mapped onto an established taxonomy of outcomes across different health areas and the socioecological framework to consider the wider context and help summarise the outcomes. Most of the outcomes were mapped to the intrapersonal and interpersonal level. In addition to the outcome mapping, three themes were constructed from the qualitative data: (1) I am not a problem I am a person, (2) Feeling cared for and loved, (3) What does getting better look like.
Our results highlight the need for patient-reported outcomes which are cocreated with service users, disseminating research and training on preventing dehumanising experiences, enhancing psychological safety and therapeutic relationships and improving access to psychological therapy.
The wider People with Personal Experience Involvement Committee at the University of Bath were consulted which included a focus group during the early planning stages. We also collaborated with a person with personal experience, at every stage of the research. This included developing our research question and aims, protocol, participant documents (e.g., information and debrief forms), advertisement and recruitment strategy, interview topic guide, the codes, the final themes and quotes and reviewing the manuscript. People with lived experience of being admitted to an acute mental health inpatient ward participated in our study.
在急性心理健康住院病房的心理治疗试验中，关于应该测量什么、何时测量以及如何测量结果的研究有限。
本研究旨在探讨服务使用者认为重要的测量结果。
本定性研究使用半结构式访谈，探讨了 14 名在过去一年中住院的参与者对心理治疗结果的看法。使用从批判现实主义角度进行的归纳和演绎编码的主题分析方法对数据进行分析。
参与者认为重要的 126 个结果被映射到不同健康领域和社会生态框架的既定结果分类法上，以考虑更广泛的背景并帮助总结结果。大多数结果都被映射到个人和人际关系层面。除了结果映射之外，还从定性数据中构建了三个主题：（1）我不是问题，我是一个人；（2）感到被关心和爱；（3）变得更好的样子。
我们的研究结果强调需要与服务使用者共同创建患者报告的结果，传播关于预防去人性化体验、增强心理安全性和治疗关系以及改善获得心理治疗的研究和培训。
巴斯大学的更广泛的患者个人经验参与委员会在早期规划阶段包括了一个焦点小组。我们还与一个有个人经验的人在研究的每一个阶段进行合作。这包括制定我们的研究问题和目标、方案、参与者文件（例如，信息和汇报表）、广告和招募策略、访谈主题指南、代码、最终主题和引语以及审查手稿。有过被收治到急性心理健康住院病房经历的人参与了我们的研究。
