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对患有智力和发育障碍的少数族裔成年人的健康研究的范围综述。

A Scoping Review of Health Research with Racially/Ethnically Minoritized Adults with Intellectual and Developmental Disabilities.

作者信息

Williamson Heather J, Chico-Jarillo Tara M, Sasse Samantha, Rennie Leticia, Etcitty Jennifer R, Howe Carol L, Lee Michele Sky, Armin Julie S

机构信息

Northern Arizona University, Flagstaff, AZ.

The University of Arizona, Tucson, AZ.

出版信息

Dev Disabil Netw J. 2023;3(2).

Abstract

Living with intersectional identities, having a disability, and being a member of a racial or ethnic minoritized group in the U.S., contributes to marginalization that may result in health disparities and health inequities. The purpose of this scoping review is to describe health research regarding adult racial/ethnic minoritized individuals in the U.S with intellectual and developmental disabilities (I/DD). Eight electronic databases were searched to identify literature on the topic published since 2000. Of the 5,229 records, 35 articles were included in the review. Eligible studies included research conducted in the U.S., published in English, and research focused on adults with I/DD with race and/or ethnicity information. The 35 articles included racial/ethnic minoritized individuals who were Black, Latinx/Hispanic, American Indian, and Asian. Twenty-nine of the 35 articles identified health disparities experienced by adults with I/DD from racial/ethnic minoritized groups. Many health disparities were demonstrated in the articles, where adult racial/ethnic minoritized individuals with I/DD fared worse compared to White adults with I/DD. Additionally, four articles describe differences in health experiences by those from racial or ethnic minoritized backgrounds. Results of this scoping review highlight the need for research that incorporates intentional inclusion of racial/ethnic minoritized people with I/DD and include novel methodologies that allow for the contributions of historically marginalized voices. Future research with an intersectionality approach is recommended to promote equity.

摘要

在美国,兼具交叉身份、身患残疾且属于种族或族裔少数群体的情况,会导致边缘化,进而可能造成健康差异和健康不平等。本范围综述的目的是描述关于美国患有智力和发育障碍(I/DD)的成年种族/族裔少数群体的健康研究。检索了八个电子数据库,以识别自2000年以来发表的关于该主题的文献。在5229条记录中,有35篇文章被纳入综述。符合条件的研究包括在美国进行的、以英文发表的研究,以及侧重于患有I/DD且有种族和/或族裔信息的成年人的研究。这35篇文章涵盖了黑人、拉丁裔/西班牙裔、美国印第安人和亚裔等种族/族裔少数群体。35篇文章中有29篇指出了患有I/DD的种族/族裔少数群体成年人所经历的健康差异。文章中展示了许多健康差异,患有I/DD的种族/族裔少数群体成年人与患有I/DD的白人成年人相比情况更糟。此外,有四篇文章描述了来自种族或族裔少数群体背景的人在健康经历上的差异。本范围综述的结果凸显了开展研究的必要性,这类研究应有意纳入患有I/DD的种族/族裔少数群体,并采用新方法,以便让历史上被边缘化的声音能够发声。建议未来采用交叉性方法进行研究以促进公平。

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