Department of Pediatrics, Division of Newborn Medicine, St. Louis Children's Hospital and Washington University in St. Louis School of Medicine, St. Louis, MO, USA.
College of Health and Human Sciences, Northern Illinois University, DeKalb, IL, USA.
J Perinatol. 2024 Jul;44(7):963-969. doi: 10.1038/s41372-023-01793-3. Epub 2023 Oct 13.
Identify stakeholders' tracheostomy decision-making information priorities in the Neonatal Intensive Care Unit (NICU).
English-speaking caregivers and clinicians who participated in NICU tracheostomy discussions between January 2017 and December 2021 were eligible. They reviewed a pediatric tracheostomy communication guide prior to meeting. Interviews focused on tracheostomy decision-making experiences, communication preferences, and guide perceptions. Interviews were recorded, transcribed, and analyzed using iterative inductive/deductive coding to inform thematic analysis.
Ten caregivers and nine clinicians were interviewed. Caregivers were surprised by the severity of their child's diagnosis and the intensive home care required, but proceeded with tracheostomy because it was the only chance for survival. All recommended that tracheostomy information be introduced early and in phases. Inadequate communication limited caregivers' understanding of post-surgical care and discharge requirements. All felt a guide could standardize communication.
Caregivers seek detailed information regarding expectations after tracheostomy placement in the NICU and at home.
确定新生儿重症监护病房（NICU）中利益相关者进行气管切开术决策的信息重点。
2017 年 1 月至 2021 年 12 月期间参与 NICU 气管切开术讨论的讲英语的护理人员和临床医生有资格参加。他们在开会前查看了小儿气管切开术沟通指南。访谈重点是气管切开术决策经验、沟通偏好和指南认知。使用迭代归纳/演绎编码对访谈进行记录、转录和分析，以提供主题分析。
对 10 名护理人员和 9 名临床医生进行了访谈。护理人员对孩子诊断的严重程度和所需的强化家庭护理感到惊讶，但由于这是唯一的生存机会，他们还是选择了气管切开术。所有人都建议尽早分阶段介绍气管切开术信息。沟通不畅限制了护理人员对术后护理和出院要求的理解。所有人都认为指南可以规范沟通。
护理人员希望在 NICU 和家中获得有关气管切开术后期望的详细信息。
