Division of Palliative Care, Texas Children's Hospital, Houston, TX; Department of Pediatrics, Baylor College of Medicine, Houston, TX.
Division of Palliative Care, Texas Children's Hospital, Houston, TX; Department of Pediatrics, Baylor College of Medicine, Houston, TX.
Curr Probl Cancer. 2023 Oct;47(5):101009. doi: 10.1016/j.currproblcancer.2023.101009. Epub 2023 Sep 5.
High-quality communication is essential for the optimal care of children with cancer and their families. There are opportunities for pediatric oncologists to engage in clear and compassionate prognostic communication across the disease trajectory including at the time of diagnosis, disease recurrence or progression, and end of life. Contrary to previously held beliefs, prognostic disclosure supports parental hope and meets the needs and expectations of families who prefer honest conversations about prognosis. These communication encounters can be challenging with many oncologists having little training in this important skill. In this summary, we aim to provide practical guidance for prognostic communication in pediatric cancer across the illness trajectory giving phrases we have found helpful including a brief overview of some published communication frameworks utilized in the care of pediatric oncology patients and families.
高质量的沟通对于儿童癌症患者及其家庭的最佳护理至关重要。儿科肿瘤医生有机会在疾病发展过程中进行清晰和富有同情心的预后沟通,包括在诊断时、疾病复发或进展时以及生命末期。与之前的观点相反,预后揭示支持父母的希望,并满足那些希望就预后进行诚实对话的家庭的需求和期望。由于许多肿瘤医生在这一重要技能方面几乎没有接受过培训,因此这些沟通接触可能具有挑战性。在本摘要中,我们旨在为儿科癌症患者在疾病发展过程中的预后沟通提供实用指导,提供了一些我们认为有用的短语,简要介绍了一些用于儿科肿瘤患者和家庭护理的已发表沟通框架。