Faculty of Social Sciences, Nursing Science, Tampere University, Tampere, Finland.
Metropolia University of Applied Sciences, Helsinki, Finland.
J Adv Nurs. 2024 Jul;80(7):2860-2868. doi: 10.1111/jan.15903. Epub 2023 Oct 17.
To describe the childhood experiences of patients with polio from the acute phase of the disease during post-war Finland in the 1950s and 1960s.
Qualitative empirical study based on self-reported history of nursing rooted in the past, a history of experiences.
Interview materials were gathered in the form of themes (45) and written interviews (4) (29 September 2018 to 30 June 2019). Data were analysed by reflexive thematic analysis to highlight hidden and latent experiences. This approach generated the study's main theme, themes and subthemes.
The main theme, 'shattered childhood', generated from the study results and was then divided into two themes, both of which were influenced in part by the loss of a familiar childhood, the changed environment, the breakdown of the body and the absence of control. Through their childhood memories, polio survivors described their broken childhoods using the following themes: 'betrayal by their bodies' and 'isolation'. In the narratives, the theme 'betrayal by one's own body' was generated by the following subthemes: 'suddenness of the affliction', 'paralysis' and 'being moved to the hospital'. The 'isolation' theme developed from the subthemes 'isolation from the body and surroundings' and 'emotional and social loneliness'.
Polio survivors' experiences during the acute stage of the disease were traumatic and demonstrated children's inferior nursing position in Finland in the 1950s and 1960s.
The study increases our understanding of the history of caring for children and families who were affected and disabled by polio and the importance of their experiences in society and healthcare settings.
The authors collaborated with the Finnish Polio Association to recruit study participants and plan the study. Patients with polio during childhood underwent interviews, and their experiences formulated the data, which were analysed and the basis of the results.
Consolidated criteria for reporting qualitative research (COREQ), a 32-item checklist for interviews and focus groups, have been used as a reporting and checklist tool. All authors have agreed on the final version and the use of the COREQ criteria, relationship with participants, theoretical framework, setting, data collection and data analysis and report.
描述 20 世纪 50 年代和 60 年代战后芬兰小儿麻痹症患者在疾病急性期的童年经历。
基于过去护理经验的自我报告的定性实证研究，是一种体验史。
采用主题（45 个）和书面访谈（4 个）的形式收集访谈材料（2018 年 9 月 29 日至 2019 年 6 月 30 日）。通过反思性主题分析来突出隐藏和潜在的经验来分析数据。这种方法产生了研究的主要主题、主题和子主题。
主要主题“破碎的童年”是从研究结果中产生的，然后分为两个主题，这两个主题都部分受到熟悉的童年、环境的改变、身体的崩溃和失去控制的影响。通过他们的童年记忆，小儿麻痹症幸存者使用以下主题描述了他们破碎的童年：“身体的背叛”和“孤立”。在叙述中，“被自己的身体背叛”这一主题由以下子主题产生：“疾病的突然发作”、“瘫痪”和“被送往医院”。“隔离”主题从“与身体和周围环境的隔离”和“情感和社会孤独”的子主题中发展而来。
小儿麻痹症幸存者在疾病急性期的经历是创伤性的，这表明在 20 世纪 50 年代和 60 年代芬兰，儿童的护理地位较低。
该研究增进了我们对照顾受小儿麻痹症影响和残疾的儿童和家庭的历史的理解，以及他们在社会和医疗保健环境中的经历的重要性。
作者与芬兰小儿麻痹症协会合作招募研究参与者并计划研究。童年时期患有小儿麻痹症的患者接受了访谈，他们的经历构成了数据，这些数据经过分析成为结果的基础。
已使用 32 项清单的定性研究报告的统一标准（COREQ）作为报告和清单工具。所有作者都同意最终版本以及 COREQ 标准的使用、与参与者的关系、理论框架、背景、数据收集和数据分析以及报告。
