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神经肌肉医学多学科诊所。

Multidisciplinary Clinics in Neuromuscular Medicine.

出版信息

Continuum (Minneap Minn). 2023 Oct 1;29(5):1585-1594. doi: 10.1212/CON.0000000000001340.

Abstract

Multidisciplinary care is comprehensive, coordinated clinical care across medical disciplines and allied health professions. Neuromuscular disorders, such as amyotrophic lateral sclerosis and muscular dystrophies, are often associated with disabling weakness and extramuscular symptoms and may benefit from care in a model that consolidates numerous clinic visits into a single more efficient multidisciplinary clinic visit. The goal of the neuromuscular multidisciplinary care model is to improve patient outcomes, patient satisfaction, quality of life, access to medications and equipment, and survival. Although the costs of running a multidisciplinary clinic are high, they are likely associated with cost savings from the patient's perspective. Several barriers to acceptance of multidisciplinary clinics include the distance needed to travel to the clinic and the duration of the clinic visit. Telehealth multidisciplinary clinic visits may address some of these concerns. Further study is needed to understand the value of multidisciplinary clinics and is a necessary step toward creating a sustainable model.

摘要

多学科护理是一种综合的、跨医学专业和相关健康职业的协调临床护理。神经肌肉疾病,如肌萎缩侧索硬化症和肌肉营养不良症,常伴有致残性肌无力和肌肉外症状,可能受益于一种将多次就诊整合为一次更高效的多学科就诊的护理模式。神经肌肉多学科护理模式的目标是改善患者的预后、满意度、生活质量、药物和设备的可及性以及生存率。尽管多学科诊所的运营成本很高,但从患者的角度来看,它们可能与节省成本有关。接受多学科诊所的几个障碍包括到诊所的距离和诊所就诊的时间。远程医疗多学科诊所就诊可能会解决其中的一些问题。需要进一步研究来了解多学科诊所的价值,这是创建可持续模式的必要步骤。

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