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远程医疗在肌萎缩侧索硬化症和其他神经肌肉疾病中的应用。

The Use of Telehealth to Enhance Care in ALS and other Neuromuscular Disorders.

机构信息

Department of Neurology, Penn State Health Milton S. Hershey Medical Center, Hershey, Pennsylvania.

Department of Neurosurgery, Penn State Health Milton S. Hershey Medical Center, Hershey, Pennsylvania.

出版信息

Muscle Nerve. 2020 Jun;61(6):682-691. doi: 10.1002/mus.26838. Epub 2020 Apr 16.

Abstract

Telehealth has the potential to improve the efficiency of healthcare while reducing the burden on patients and caregivers. Encounters can be synchronous or asynchronous. When used for care of those with amyotrophic lateral sclerosis (ALS) by individual health care providers or by a multidisciplinary team, synchronous telehealth is feasible, acceptable, may produce outcomes comparable to those of in-person care, and is cost effective. Individuals with ALS who use telehealth tend to have lower physical and respiratory function and to live farther from an ALS clinic than those who exclusively attend in-person clinic visits. Asynchronous telehealth can be used as a substitute full multidisciplinary visits, or for remote monitoring of pulmonary function, gait/falls, and speech. Barriers to implementing telehealth on a wider scale include disparities in access to technology and challenges surrounding medical licensure and billing, but these are being addressed.

摘要

远程医疗有提高医疗效率、减轻患者和护理人员负担的潜力。远程医疗可以是同步的,也可以是异步的。当由个体医疗服务提供者或多学科团队用于护理肌萎缩侧索硬化症(ALS)患者时,同步远程医疗是可行的、可接受的,可能产生与面对面护理相当的结果,并且具有成本效益。使用远程医疗的 ALS 患者往往身体和呼吸功能较差,并且居住的地方离 ALS 诊所比那些只参加面对面诊所就诊的患者更远。异步远程医疗可以作为完整的多学科访问的替代,或者用于远程监测肺功能、步态/跌倒和言语。在更广泛的范围内实施远程医疗的障碍包括技术获取方面的差异以及医疗许可和计费方面的挑战,但这些问题正在得到解决。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2927/10797583/3dbef5907727/nihms-1950153-f0001.jpg

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