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本文引用的文献

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Admitting what is needed: How the health system and society can reduce hospitalizations for children with medical complexity.承认所需:卫生系统和社会如何减少患有复杂疾病儿童的住院率。
J Hosp Med. 2023 Jan;18(1):90-94. doi: 10.1002/jhm.12948. Epub 2022 Aug 23.
2
Improving Support for Care at Home: Parental Needs and Preferences When Caring for Children with Medical Complexity.改善对居家照护的支持:照顾患有复杂疾病儿童时父母的需求和偏好。
J Pediatr Health Care. 2022 Mar-Apr;36(2):154-164. doi: 10.1016/j.pedhc.2020.08.005. Epub 2021 Oct 28.
3
Linking Parent Confidence and Hospitalization through Mobile Health: A Multisite Pilot Study.通过移动健康将家长信心与住院治疗联系起来:一项多地点试点研究。
J Pediatr. 2021 Mar;230:207-214.e1. doi: 10.1016/j.jpeds.2020.11.049. Epub 2020 Nov 27.
4
Codesign and Usability Testing of a Mobile Application to Support Family-Delivered Enteral Tube Care.支持家庭提供肠内管护理的移动应用程序的共同设计和可用性测试。
Hosp Pediatr. 2020 Aug;10(8):641-650. doi: 10.1542/hpeds.2020-0076. Epub 2020 Jul 2.
5
Safe Work-Hour Standards for Parents of Children With Medical Complexity.患有复杂疾病儿童的父母的安全工作时间标准。
JAMA Pediatr. 2020 Jan 1;174(1):7-8. doi: 10.1001/jamapediatrics.2019.4003.
6
Home Health Care For Children With Medical Complexity: Workforce Gaps, Policy, And Future Directions.儿童医疗复杂性的家庭保健:劳动力差距、政策和未来方向。
Health Aff (Millwood). 2019 Jun;38(6):987-993. doi: 10.1377/hlthaff.2018.05531.
7
Care maps and care plans for children with medical complexity.患有复杂疾病儿童的护理图谱与护理计划。
Child Care Health Dev. 2019 Jan;45(1):104-110. doi: 10.1111/cch.12632.
8
Establishing Relationships and Navigating Boundaries When Caring for Children With Medical Complexity at Home.在家照顾患有复杂疾病儿童时建立关系与把握界限。
Home Healthc Now. 2018 Mar/Apr;36(2):93-102. doi: 10.1097/NHH.0000000000000636.
9
Care maps for children with medical complexity.患有复杂疾病儿童的护理图谱。
Dev Med Child Neurol. 2017 Dec;59(12):1299-1306. doi: 10.1111/dmcn.13576. Epub 2017 Oct 6.
10
Evaluating the Paper-to-Screen Translation of Participant-Aided Sociograms with High-Risk Participants.评估高危参与者辅助社会关系图的纸质版到电子版翻译。
Proc SIGCHI Conf Hum Factor Comput Syst. 2016 May;2016:5360-5371. doi: 10.1145/2858036.2858368.

运用社会网络分析研究复杂疾病患儿结局的可行性。

Feasibility of social network analysis to study outcomes of children with medical complexity.

机构信息

School of Medicine and Public Health, University of Wisconsin-Madison, Madison, Wisconsin, USA.

School of Public Health-Bloomington, Indiana University, Bloomington, Indiana, USA.

出版信息

J Hosp Med. 2024 Jan;19(1):35-39. doi: 10.1002/jhm.13231. Epub 2023 Oct 25.

DOI:10.1002/jhm.13231
PMID:37880922
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10843286/
Abstract

Since most care for children with medical complexity (CMC) is delivered daily in communities by multiple caregiving individuals, that is, caregiving networks, tools to assess and intervene across these networks are needed. This study evaluated the feasibility of applying social network analysis (SNA) to describe caregiving networks. Because hospitalization is among the most frequently used outcomes for CMC, exploratory correlations between network characteristics and CMC hospital use were evaluated. Within 3 weeks, the goal network enrollment was achieved, and all feasibility measures were favorable. Network characteristics correlated with hospital use, that is, smaller, denser networks, with more closed-loop communication correlated with fewer hospital days. Networks with more professional caregivers also correlated with fewer hospital days. SNA is a feasible tool to study CMC caregiving networks. Preliminary data support rigorous hypothesis testing using SNA methods. Network-based interventions to improve CMC health may be an important future direction.

摘要

由于大多数对患有复杂疾病的儿童(CMC)的护理都是由多个照顾者在社区中提供的,也就是说,需要有工具来评估和干预这些网络中的护理关系。本研究评估了应用社会网络分析(SNA)来描述护理关系网络的可行性。由于住院是 CMC 最常用的结果之一,因此评估了网络特征与 CMC 住院使用之间的探索性相关性。在 3 周内,达到了目标网络的入组人数,并且所有可行性指标都很好。网络特征与住院使用相关,即较小、较密集的网络,以及更多的闭环沟通与较少的住院天数相关。具有更多专业护理人员的网络也与较少的住院天数相关。SNA 是研究 CMC 护理关系网络的一种可行工具。初步数据支持使用 SNA 方法进行严格的假设检验。基于网络的干预措施可能是改善 CMC 健康的一个重要未来方向。