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多发性硬化症护理伙伴研究的机遇:一次访谈

Opportunities in Multiple Sclerosis Care Partner Research: An Interview.

作者信息

Finlayson Marcia, Pakenham Kenneth

出版信息

Int J MS Care. 2023 Nov-Dec;25(6):278-280. doi: 10.7224/1537-2073-25.6.278. Epub 2023 Nov 8.

Abstract

Guest editor Marcia Finlayson, PhD, OT Reg (Ont), OTR, is a professor in the School of Rehabilitation Therapy at Queen's University in Ontario, Canada. She began her career as a clinical occupational therapist and shifted to a research career focused on generating and sharing knowledge to help people affected by multiple sclerosis (MS) lead healthy, meaningful lives with control over their participation in daily activities, at home and in the community, particularly as they age. For this special issue on caregiving in MS, she chose to interview Kenneth Pakenham, PhD, emeritus professor of clinical and health psychology at the University of Queensland in Brisbane, Australia. For more than 4 decades, he has investigated the psychological well-being welle-eing of caregivers, including coping mechanisms and innovative interventions to improve their quality of life. His work is dedicated to applying positive health frameworks to chronic illnesses and to empowering caregivers and individuals with MS. Together, their expertise illuminates the multifaceted challenges and opportunities in MS caregiving research and understanding.

摘要

客座编辑玛西亚·芬利森博士,安大略省注册职业治疗师(OT Reg [Ont]),职业治疗师(OTR),是加拿大安大略省女王大学康复治疗学院的教授。她最初是一名临床职业治疗师,后来转向研究领域,专注于创造和分享知识,以帮助受多发性硬化症(MS)影响的人们过上健康、有意义的生活,并能够掌控自己在家中和社区参与日常活动的情况,尤其是随着年龄增长。在这个关于MS护理的特刊中,她选择采访澳大利亚布里斯班昆士兰大学临床与健康心理学名誉教授肯尼斯·帕克南博士。四十多年来,他一直在研究护理人员 的心理健康,包括应对机制和改善他们生活质量的创新干预措施。他的工作致力于将积极健康框架应用于慢性病,并增强护理人员和患有MS的个人的能力。他们的专业知识共同阐明了MS护理研究与理解中的多方面挑战和机遇。

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