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母亲对其患有自闭症谱系障碍儿童的紧急护理的满意度。

Mothers' satisfaction with emergency care when their child has an autism spectrum disorder.

机构信息

Pat Matthews Academic School of Nursing, Hillel Yaffe Medical Center, Hadera, Israel.

Pat Matthews Academic School of Nursing, Hillel Yaffe Medical Center, Hadera, Israel.

出版信息

J Pediatr Nurs. 2024 Jan-Feb;74:35-40. doi: 10.1016/j.pedn.2023.11.006. Epub 2023 Nov 21.

DOI:10.1016/j.pedn.2023.11.006
PMID:37992479
Abstract

PURPOSE

This study aimed to examine factors identified by mothers as affecting their satisfaction with the care provided to their children in the Emergency Department (ED), among mothers of children with autistic spectrum disorder (ASD) in comparison to mothers of children without ASD.

DESIGN AND METHODS

In this correlational quantitative study, 128 Israeli mothers - 59 (46%) mothers of children with ASD and 69 (54%) of children without ASD - completed an online survey based on a Ministry of Health national survey of patient experience.

RESULTS

Mothers of children with ASD expressed lower satisfaction with the care provided. The difference was particularly evident concerning waiting times for examination of the child by nurses and physicians in the ED, whether the nurses were attentive and responsive to the mother's questions and concerns, whether the ED staff demonstrated coordination and cooperation with regard to medical care of the child, and whether work in the ED was conducted in an orderly and organized manner. The presence of communication difficulties in children predicted mothers' satisfaction with care.

CONCLUSIONS

These findings suggest that certain needs of mothers and/or their children with ASD do not receive an appropriate response in the ED.

PRACTICE IMPLICATIONS

It is important to raise the awareness of healthcare providers in EDs regarding the needs of children with ASD and their parents, especially children with communication difficulties. Strategies should be implemented to improve the experience of children with ASD and their parents in the ED.

摘要

目的

本研究旨在考察母亲认为影响其对子女在急诊部(ED)接受护理满意度的因素,比较自闭症谱系障碍(ASD)儿童的母亲和无 ASD 儿童的母亲。

设计与方法

在这项相关的定量研究中,128 名以色列母亲 - 59 名(46%)ASD 儿童的母亲和 69 名(54%)无 ASD 儿童的母亲 - 完成了一项基于卫生部对患者体验的全国性调查的在线调查。

结果

ASD 儿童的母亲对所提供的护理表示不满。在 ED 护士和医生对儿童进行检查的等待时间、护士是否关注并回应母亲的问题和担忧、ED 工作人员在儿童医疗护理方面是否表现出协调与合作、ED 工作是否有序进行等方面,差异尤为明显。儿童存在沟通困难预测了母亲对护理的满意度。

结论

这些发现表明,ED 中某些母亲和/或其 ASD 儿童的需求没有得到适当回应。

实践意义

提高 ED 医护人员对 ASD 儿童及其家长的需求的认识很重要,特别是那些有沟通困难的儿童。应实施策略来改善 ASD 儿童及其家长在 ED 的体验。

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